Tag Archives: FHLH

2nd BMT – DAY +7

MOMMY: Liam is doing well today! I wish I would stop holding my breath. Time will help with that. He did receive platelets, but that is to be expected. We will be moving to the Ronald House today!! I feel so … Continue reading

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DAY -8 ~ Last Clinic Appt before BMT #2

It was a really emotional day for me, just knowing the road ahead for Liam. It was hard to keeps the tear under control, knowing you have to make him sick to make him better. Liam will get his pic … Continue reading

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Abnormal cells…

Update from Mommy: I got the call from the doctor about the cell abnormality in Liam’s cells. Its still there and Liam will need the harsher BMT. With this he will have to have 100% engraftment of donor cells from … Continue reading

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The steroids have caused lots of weight gain.

First day out of the Hospital The steroids have been really hard on Liam. He hasn’t been sleeping well at night.

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Kristy talked to the doctor

Kristy’s facebook post: So I talked to the doctor and this is what they said. If Liam’s bone marrow biopsy comes back that there are no new donor cells reproducing then he will have to have another BMT and if … Continue reading

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DAY +439 – Call from Seattle

Post from Kristy 10:45 pm I could write this earlier because I just couldn’t stomach the thought of it. Seattle called Liam will be getting a bone marrow aspiration next week. They said that they are seeing deadly GVHD with … Continue reading

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DAY +433

Post from Kristy: Liam’s graft is still dropping the drs are having a meeting today with the top drs in the U.S. and will let me know what happens next. This is not a good thing. Please keep our family … Continue reading

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DAY+ 432 – 07/18/2012 – DNA Chimerism Analysis

DAY+ 432 – 07/18/2012        DNA Chimerism Analysis – Blood Derived & naive young  T cells       47% (CD3+) T Cell                       45% donor origin (55% host) (CD33+) Myeloid Cells           4% donor origin (96% host) (CD56+) NK Cells         … Continue reading

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Lab result… Please say a prayer

FB Post from: Kristina Just talked to Seattle and they will have the results tomorrow and will call me at the end of the day. Please pray for better results I don’t think I can handle bad news right now

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06/19/12 – Clinic Appointment

Liam had his monthly check on Tuesday the 19th. He had a regular check up, labs, weight, height, nutrition, pharmacy, doctor. Weight 24 lbs, height 32.1 inches. He is still gaining in both areas They did his Chimerism Analysis to see if … Continue reading

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