One year ago Liam was fighting for his life, with an inspiring will to survive.Reflections, looking back… By Nana
Looking back at the last year it seems like such a blur. It has been a roller coaster of emotions, from extreme lows to extreme highs. This day takes you back to those moments in time that will forever be etched in my mind. I don’t know that I have still fully excepted it, at times praying this was just a NIGHTMARE… hoping to wake up from this, and that it would all be gone.
The visions in my mind of Liam laying their so helpless and feeling so helpless, with so many machines helping to keep him alive. He had to be put him on a ventilator, kidney dialyses, IV fluids, their was a wall of pumps. Those visions are a painful reminder of how far Liam has come.
We will be forever grateful to Legacy SC Hospital and Legacy Emauel Childrens Hospital. To all the doctors, nurses, all the medical staff at both hospitals, the ER Dr., Dr. G and the nurse that care for him until he was transported to PICU, the transport team, Dr. L, all the PICU medical staff, Dr. O and her team of doctors. We would also like to give a big thanks to the nurse that suggested that it looked like a case that she had care for with HLH (also known as Hemophagocytic lymphohistiocytosis). I wish that someday we can meet her. God blessed Liam with a medical staff that never gave up.
Thank you to all our family, friends, and our community for all the love, support, words of encouragement and endless prayers for Liam and our Family. Thank you so much for being their to keep us going.
We all feel so blessed that Liam has made it to this day, never taking it for granted. Thank you God for our many blessings.
It is so amazing that Liam is now on DAY +150. It is still a very stressful, and we are taking ONE DAY AT A TIME. Liam is doing great, he loves being all together with his brothers. Liam will be in isolation until May 2012. We have lived that way since Liam got sick. It has been a sacrifice that has been so worth it. I don’t think you can be safe enough, but at least try to do the best you can. It is really hard for me personally, you want to keep him in a protective bubble. You feel that with a child that can not speak for himself or even understand the seriousness of all of this, we have to do everything in our power to get him thru this and keep him safe. Our lifes come last and Liam comes first, he has been thru to much to take any chances.
Please continue to keep Liam & all of us in your prayers.
We Love you so much Little Warrior,
Love , Nana & Papa