Monthly Archives: July 2012

Faith…

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Precious Little Liam

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Please pray for Jillian’s Family, she lost her fight with HLH.

 Jillian Elizabeth Blais, 19, of Samsula, passed away on Wednesday, July 18, 2012 at Cincinnati Children’s Hospital from post-bone marrow transplant complications. Jillian suffered from HLH (hemophagocytic lymphohistiocytosis). Jillian was a 2011 graduate and class salutatorian of Father Lopez Catholic … Continue reading

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Brothers…

Ryder and Liam – Priceless moments

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DAY +439 – Call from Seattle

Post from Kristy 10:45 pm I could write this earlier because I just couldn’t stomach the thought of it. Seattle called Liam will be getting a bone marrow aspiration next week. They said that they are seeing deadly GVHD with … Continue reading

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This is for my Baby Girl… Love you Mom

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DAY +433

Post from Kristy: Liam’s graft is still dropping the drs are having a meeting today with the top drs in the U.S. and will let me know what happens next. This is not a good thing. Please keep our family … Continue reading

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DAY+ 432 – 07/18/2012 – DNA Chimerism Analysis

DAY+ 432 – 07/18/2012        DNA Chimerism Analysis – Blood Derived & naive young  T cells       47% (CD3+) T Cell                       45% donor origin (55% host) (CD33+) Myeloid Cells           4% donor origin (96% host) (CD56+) NK Cells         … Continue reading

Posted in Doctors Appointments, Hemophagocytic lymphohistiocytosis (HLH), Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, Liam's BMT updates | Tagged , , , , , , | 1 Comment

Lab result… Please say a prayer

FB Post from: Kristina Just talked to Seattle and they will have the results tomorrow and will call me at the end of the day. Please pray for better results I don’t think I can handle bad news right now

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Please keep Jaelynn and her Mommy in your prayers…

Jaelynn’s Journey Jaelynn & her mommy needs lots a prayers. In August 2011, Jaelynn was diagnosed with Hemophagocytic Lymphohistiocytosis (HLH). She recieved her Bone Marrow Transplant in Dec. 2011. It has been very hard on her she developed Graft-versus-host disease (GVHD). … Continue reading

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