Monthly Archives: November 2010

Update from Mommy

Post by Mommy Liam is doing good. He had his last chemo hopefully. He weighs 10lbs 15oz and has the chubbiest cheeks ever. They sent 2 of the genetic tests off and they will take a month to get the … Continue reading

Posted in Hemophagocytic lymphohistiocytosis (HLH) | Tagged , , , , | Comments Off

Today is Liam’s 10th treatment

Post by: Grandma Terri Ann Poulsen-Smith He is Getting the genetic testing today,(last week didn’t happen due to scheduling error) Prayers for our brave warrior today and the days ahead!

Posted in Hemophagocytic lymphohistiocytosis (HLH), HLH | Tagged , , , , | Comments Off

Happy Thanksgiving. We are very blessed

Feels so blessed to be able to spend this day with Little Liam. So thankful to God above for the answered prayers, the love and support from all our family, friends, friends of friends who have prayed for our Little … Continue reading

Posted in Hemophagocytic lymphohistiocytosis (HLH) | Tagged , , , , | Comments Off

Liam’s appt. uddate for 11/22/10

Ferritin level on 11/15 was 732 (H), This week his level is lower, it is 620. The normal range should be 36-391. His weight this week is 10 lbs. 8.8 oz., last week it was 9lbs 13 oz. Everything is … Continue reading

Posted in Hemophagocytic lymphohistiocytosis (HLH) | Tagged , , , , | Comments Off

Approval for genetic testing

Post by: Grandma Terri Ann Poulsen-Smith Thank you all for the prayers! The insurance approved Liam’s genetic testing!! Hopefully will have it done tomorrow before his 9th chemo treatment!! Pray for his healing, safe driving, to and from the hospital … Continue reading

Posted in Hemophagocytic lymphohistiocytosis (HLH) | Tagged , , , , | Comments Off

Liam had a great night last night.

He fell asleep at 9pm, and didn’t wake up until 5:45am. He is all smiles today. So glad he is feeling better, early this week after his chemo he wasn’t feeling very good. Thanks everyone for your prayers♥

Posted in Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, HLH | Tagged , , , , | Comments Off

The Love of Brothers…

Posted in Hemophagocytic lymphohistiocytosis (HLH), HLH | Tagged , , , , | Comments Off

Liam’s Appointment Update

Ferritin level on 11/08 was 958 (H), This week his level is lower, it is 732. The normal range should be 36-391. His weight on 11/01/10 was 9 lbs. 1 oz., this week his weight is 9 lbs. 13 oz. … Continue reading

Posted in Hemophagocytic lymphohistiocytosis (HLH), HLH | Tagged , , , , , | Comments Off

Liam is getting his 8th treatment today

Post by: Grandma Terri Ann Poulsen-Smith Liam is getting his 8th treatment today and went in early for some additional bloodwork for the genetic testing. So far the 1st 3 test’s were negative!! 5 more to go~ Bless you Liam … Continue reading

Posted in Hemophagocytic lymphohistiocytosis (HLH) | Tagged , , , , , | Comments Off

Today was a good day…

Liam was all smiles and trying to talk to us. His chemo treatment (#7) went well. He was so cute, he was trying to sweet talking his nurse, giving her big smiles and batting his cute eyes at her. She … Continue reading

Posted in Hemophagocytic lymphohistiocytosis (HLH), Photos | Tagged , , , , | Comments Off