The family and friends of our little warrior, Liam Smith are uniting to raise support in helping him and his family as they fight to overcome Liam’s rare, but life threatening disease. We hope you will join us.
By Mail to:
Liam R. Smith
P.O. Box 1183
Woodland, WA 98674
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This was taken 12 days before Liam was admitted to the Emergency Room.
34 days after starting HLH-2004 Protocol, chemotherapy and steroid treatment.
ANC (Absolute Neutrophil Count) 0
October 17, 2012
Today, I was admitted to the hospital to start the preparation to receive donor cells from my big brother Hunter. Please keep us both in your prayers.
TOTAL PAGE VIEWSThank you for visiting Liam's blog.
Seattle Children’s Hospital
4800 Sand Point Way NE
Seattle, WA 98105
Dr. Jean Sanders and Liam
Dr. Jean Sanders built the pediatric transplant program at Fred Hutchinson Cancer Research Center and provided exemplary medical care and compassion for thousands of patients and their families. During her career she trained more than 90 specialists in her field and authored over 300 scientific publications. She also chaired multiple cooperative research group studies and served as advisor for many medical and scientific organizations including the Children's Oncology Group, the National Childhood Cancer Foundation, the American Academy of Pediatrics and National Institutes of Health.
Click on the photo to read about Dr. Jean Sanders. You will be redirected to http://questmagazine.wordpress.com/2012/06/11/pediatric-transplant-pioneer-jean-sanders-built-the-hutchinson-centers-and-the-nations-pediatric-transplant-program/
Seattle Cancer Care Alliance
825 Eastlake Avenue E.
Seattle, WA 98109
1354 Aloha St.
Seattle, WA 98109
1335 Aloha St. (under the clinic)
Seattle, WA 98109
Need help finding SCCA?
Call (206) 288-SCCA (7222) or
(800) 804-8824 .
We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.
- The Birthday Boy…
- September is Histio Awareness
- DAY +231 ~ LIAM’S CHIMERISM TEST RESULTS 2nd BMT
- DAY +218 – Three years ago today…
- DAY +195 Clinic Appointment
- The Birthday Boy…
- LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156
- 2nd BMT – DAY +153 update – 5 months post Transplant
- 2nd BMT – DAY +132 ~ Liam is doing good.
- 2nd BMT – DAY +110 – Coming Home :)
- 2nd BMT – DAY +84
- 2nd BMT – DAY +82
- Liam learning to ride his bicycle (Video Link)
- Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases
- Liam is my HERO…
- 2nd BMT – DAY +79 Mommy’s Superman
- Mommy’s beautiful baby boy
- 2nd BMT – DAY +70
- 2nd BMT – DAY +67
- 2nd BMT – DAY +66
- Nana on My Hero… FB post by Mommy
- Ann on From a friends page..
- Auntie Deb on DAY+ 606
- Diane Balch on DAY +603
- Ann on DAY +600 UPDATE
- Nada Collins on Still no real answers…
- Debra Tsugawa on Liam is going to receive Hunters cells today, please pray… updates from mommy
- Nana on Today you can tell Liam is not feeling a 100% :(
- Ann on Today you can tell Liam is not feeling a 100% :(
- Ann on Picc Line placement today : (
- 1st BMT – DAY +0 Transplant Day – Photos
- 1st BMT – Journal Updates to Day +50
- 1st BMT – Liam’s Chimerism Engraftment Results
- Bone Marrow Registry Info
- Fundraising for Liam
- HLH Stories
- Kristy’s Twitter Updates
- What is HLH or FHLH?
- Alexandra H. Filipovich, MD – special interest in histiocytic disorders, especially Hemophagocytic Lymphohistiocytosis (HLH)
- Applying for Social Security Benefits for histiocytosis.
- Diagnostic criteria for hemophagocytic lymphohistocytosis (HLH)
- Diaper Rash Care & Home Remedies
- What are the symptoms of adrenal insufficiency?
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Monthly Archives: November 2011
Kristy’s Twitter update for: Tuesday, November 29, 2011 Liam has had 2 weeks of no red flags on his blood counts we might know the results of his graft test by the end of the week Hope it’s good Kristy’s … Continue reading
Kristy’s Twitter Update for: Monday, November 28, 2011 Tomorrow Liam gets his graft tested. PLEASE keep him in you thoughts and prayers for only good results. Thank you
How and when should we monitor chimerism after allogeneic stem cell transplantation? P Bader, D Niethammer, A Willasch, H Kreyenberg and T Klingebiel Source: http://www.nature.com/bmt/journal/v35/n2/full/1704715a.html Table 1. Chimerism, definition and implications http://www.nature.com/bmt/journal/v35/n2/fig_tab/1704715t1.html#figure-title Next table | Figure and tables index
Kristy’s Twitter Update for: Saturday, November 26, 2011 Liam has 11 teeth now and is working on 12. They should be checking his graft Tuesday please keep him in your prayers. (about 3 days ago)
This has been a trying week for me. Liam had his appointment last Tuesday and he had a rash again they looked it over and thought it was the same rash he had before. Which is good but a BMT … Continue reading
http://abc.go.com/watch/private-practice/SH559070/VD55153596/the-breaking-point The Breaking Point 43:09 | Aired on ABC 11/17/11 Amelia bonds with an 18-year-old as they endure drug detox in rehab. The main story line is about drug addiction, and intervention. Cooper is caring a for a sick child … Continue reading
Kristy’t Twitter update for: November 16, 2011 Yesterday I was told Liam wouldn’t get his graft checked again until Jan. 2day I was told he wouldn’t get it checked until may. I got that all cleared up and they are … Continue reading
FB post by Uncle Mark Bunker 11:04pm Nov 16 Im am so proud to be able say LIAM is MY NEPHEW! He is the strongest person i know! I love you buddy!!!
Kristy’s Twitter Update for: November 12, 2011 Happy 6 months BMT to my mighty warrior Liam. You are truly an amazing, inspiring little man. You bring such happiness 2 my heart I love you Another beautiful morning. Liam loves the … Continue reading
Kristy’s Twitter Update for: November 10, 2011 Another beautiful morning Wish I felt good. Trying 2 keep my eyes open seems impossible. I have way 2 much 2 do! Don’t have time 2 b sick (about 6 hours ago)