Tag Archives: Hemophagocytic lymphohistiocytosis (HLH)

The Birthday Boy…

A blessing each and everyday. We love you Liam to the Moon and Back 5 times…

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DAY +218 – Three years ago today…

DAY +218 ~ Three years ago today Liam was diagnosed with HLH – Hemophagocytic Lymphohistiocytosis. I remember be calling into the conference room with Dr. L and Dr. O and the Chaplin. The fear that was running through my mind … Continue reading

Posted in Bone Marrow Transplant, Hemophagocytic lymphohistiocytosis (HLH), Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, HLH, Liam's 2nd BMT updates | Tagged , , , , , | Comments Off

LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156

Chimerism Whole Bone Marrow Biopsy DAY +28     04/03/2013     100% donor Noa     0% Liam     0% donor Hunter DAY +84     05/29/2013     79% donor Noa       21% Liam   0% donor Hunter ——————————————————————————————- DNA Sorted Chimerism Peripheral Blood (CD3+) T Cell, … Continue reading

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2nd BMT – DAY +153 update – 5 months post Transplant

DAY +153 update ~ It’s been awhile since the last update. Liam is doing good, today he is 5 months post transplant. He had 2 appointments last week. He had to have an IVG infusion on last Monday, to help … Continue reading

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2nd BMT – DAY +82

Liam loves to look at all the photos and videos on the iPad of the family. Every time he see’s this photo, this is what he says, “NO NO’s (Noa) BLOOD SAVE BOO” It is so hard to hold back … Continue reading

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Liam is my HERO…

Posted in Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, HLH, Insprirational Quotes | Tagged , , , , | Comments Off

2nd BMT – DAY +79 Mommy’s Superman

My Superman! Love him more then words can express… Liam was released from the hospital on Wednesday (5/22). He was waiting patiently by the door to go. It was a bitter sweet moment. Excited that he is doing well enough … Continue reading

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Mommy’s beautiful baby boy

Posted in Bone Marrow Transplant, Hemophagocytic lymphohistiocytosis (HLH), Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, HLH, Liam's 2nd BMT updates, Photos | Tagged , , , , , , , , | Comments Off

2nd BMT – DAY +67

Happy Mother”s Day from Liam (4 photos)   Liam is having a great day. He slept well last night. Fell asleep around 10:30pm, and didn’t wake up until 9am. He woke up with a beautiful smile and happy. The lab cultures … Continue reading

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2nd BMT – DAY +66

Liam is having a good day. He has been up playing since he woke up from his nap. The last few days he has been eating small amounts of food at lunch and dinner. Still not interested in breakfast. But … Continue reading

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