Tag Archives: Hemophagocytic Syndrome

2nd BMT – DAY +70

Future Doctor ~`Blood cultures are still negative. Tonight is the last doses of meropenum. They will wait one day, than take blood cultures. Praying that the test will continue to be negative. He will be on the bactrim longer. He … Continue reading

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The steroids have caused lots of weight gain.

First day out of the Hospital The steroids have been really hard on Liam. He hasn’t been sleeping well at night.

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06/19/12 – Clinic Appointment

Liam had his monthly check on Tuesday the 19th. He had a regular check up, labs, weight, height, nutrition, pharmacy, doctor. Weight 24 lbs, height 32.1 inches. He is still gaining in both areas They did his Chimerism Analysis to see if … Continue reading

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Liam’s first time playing outside…

He was very excited to be going outside for the first time for a walk!! : He has never walked around outside before. He has rode the 4-wheeler, and went for walks in a pack, but never by himself walking. … Continue reading

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May 14, 2012 – Liver labs are going down!!

Kristina update her FB status: Blood draw done! Leslie did an amazing job ♥ her everyone there said Liam is my little twin they couldn’t believe how much he looks like me Update: Liver labs are going down!! They test … Continue reading

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Liam BMT Birthday – 1 year post Transplant

Today it has be one year since Liam received his Bone Marrow Transplant from his brother Hunter. We feel so blessed to be at this milestone in Liam’s life. We are so thankful to God for this blessing. He blessed … Continue reading

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2011 National Lyme Conference summary – Ehrlichiosis and HLH – Lyme Disease

Dr. Andrew Walter reported on Ehrlichiosis and Hemophagocytic Lymphohistiocytosis (HLH) in cases of children diagnosed in Delaware. Ehrlichiosis is an uncommon tick borne disease seen in the mid-Atlantic area and therefore clinicians need to maintain a heightened vigilance. Ticks in … Continue reading

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Diaper Rash Care & Home Remedies

Chemo Treatments and all of the medicine that patients get Pre Bone Marrow Transplant are so harsh. The diaper rash can be almost unbearable for a child. I hope this information may be helpful to other patients going thru HLH … Continue reading

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