Monthly Archives: August 2012

The Third Annual HLH Boot Camp – The Diagnosis and Management of HLH (Family Registration)

Saturday, September 22, 2012 from 8:30 AM to 5:00 PM (EDT) Cincinnati Children’s Hospital Medical Center 3333 Burnet Ave Cincinnati, OH 45229 The Diagnosis and Management of Hemophagocytic Lymphohistiocytosis (HLH) The Immune Deficiency and Histiocytosis Program at Cincinnati Children’s Hospital invites you to … Continue reading

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Brothers :)

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Outside Photos of Liam

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DAY +458 Appointment in Seattle – Results

Update from Kristy - So Liam’s results: his bone marrow shows 5% donor cells and I’m not sure if that means new donor cells or total donor cells. I will be talking to the doctor about that tomorrow. His liver was … Continue reading

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Liam is 23 months old today!

Kristy’s Facebook Post: Liam is 23 months old today! Such an amazing little man

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DAY +454 Bone Marrow Aspiration

Liam’s appointment went well today. He weighs 24.7 lbs., and is 34″ tall. We won’t know the results until next week, please prayer with all your heart for good results. Kristy’s fb post: I will never get used to Liam being … Continue reading

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Kristy talked to the doctor

Kristy’s facebook post: So I talked to the doctor and this is what they said. If Liam’s bone marrow biopsy comes back that there are no new donor cells reproducing then he will have to have another BMT and if … Continue reading

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