Tag Archives: Familial Erythrophagocytic Lymphohistiocytosis

2nd BMT – DAY +153 update – 5 months post Transplant

DAY +153 update ~ It’s been awhile since the last update. Liam is doing good, today he is 5 months post transplant. He had 2 appointments last week. He had to have an IVG infusion on last Monday, to help … Continue reading

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2nd BMT – DAY +7

MOMMY: Liam is doing well today! I wish I would stop holding my breath. Time will help with that. He did receive platelets, but that is to be expected. We will be moving to the Ronald House today!! I feel so … Continue reading

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2nd BMT – DAY +6

Liam just threw up We had to go up on pain meds but he’s still smiling He’s such a warrior! Day +6 and still doing well.

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2nd BMT – DAY +0 Happy Transplant Day

It is a great morning Liam slept all night. He is up and playing with his new firetruck he got yesterday from child life , he really likes it a lot. He is really happy this morning. Today is the … Continue reading

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The steroids have caused lots of weight gain.

First day out of the Hospital The steroids have been really hard on Liam. He hasn’t been sleeping well at night.

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06/19/12 – Clinic Appointment

Liam had his monthly check on Tuesday the 19th. He had a regular check up, labs, weight, height, nutrition, pharmacy, doctor. Weight 24 lbs, height 32.1 inches. He is still gaining in both areas They did his Chimerism Analysis to see if … Continue reading

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Today Liam is 13 months post BMT!

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Liam’s first time playing outside…

He was very excited to be going outside for the first time for a walk!! : He has never walked around outside before. He has rode the 4-wheeler, and went for walks in a pack, but never by himself walking. … Continue reading

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May 14, 2012 – Liver labs are going down!!

Kristina update her FB status: Blood draw done! Leslie did an amazing job ♥ her everyone there said Liam is my little twin they couldn’t believe how much he looks like me Update: Liver labs are going down!! They test … Continue reading

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Liam BMT Birthday – 1 year post Transplant

Today it has be one year since Liam received his Bone Marrow Transplant from his brother Hunter. We feel so blessed to be at this milestone in Liam’s life. We are so thankful to God for this blessing. He blessed … Continue reading

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