Tag Archives: Familial Hemophagocytic Histiocytosis

The Birthday Boy…

A blessing each and everyday. We love you Liam to the Moon and Back 5 times…

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DAY +231 ~ LIAM’S CHIMERISM TEST RESULTS 2nd BMT

Liam’s engraftment results. The results for his 1st and 2nd Transplant results. Feeling grateful and very blessed that the results are higher at this point compared to his 1st transplant. Please continue to pray that his results will stay stable … Continue reading

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DAY +218 – Three years ago today…

DAY +218 ~ Three years ago today Liam was diagnosed with HLH – Hemophagocytic Lymphohistiocytosis. I remember be calling into the conference room with Dr. L and Dr. O and the Chaplin. The fear that was running through my mind … Continue reading

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LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156

Chimerism Whole Bone Marrow Biopsy DAY +28     04/03/2013     100% donor Noa     0% Liam     0% donor Hunter DAY +84     05/29/2013     79% donor Noa       21% Liam   0% donor Hunter ——————————————————————————————- DNA Sorted Chimerism Peripheral Blood (CD3+) T Cell, … Continue reading

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2nd BMT – DAY +153 update – 5 months post Transplant

DAY +153 update ~ It’s been awhile since the last update. Liam is doing good, today he is 5 months post transplant. He had 2 appointments last week. He had to have an IVG infusion on last Monday, to help … Continue reading

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2nd BMT – DAY +132 ~ Liam is doing good.

July 9 DAY +132 ~ Liam is doing good.  It has been a couple of weeks since I last updated. Things have been good. Just trying to get back to some sense of normal. Trying to manage everything, somedays are easier … Continue reading

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2nd BMT – DAY +110 – Coming Home :)

 Things have been so busy the last 2 weeks. We had an appointment June 4th, at that appointment they said that Liam wouldn’t be going home at Day +100 because of the gut GVHD. Than the next appointment they said … Continue reading

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Liam learning to ride his bicycle (Video Link)

Liam learning to ride his bicycle. He had a smile from ear to ear. He said, “GO FAST” PRICELESS MOMENTS… Liam – May 26, 2013 12:16pm If the video doesn’t work click on this link to view video. You will be … Continue reading

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2nd BMT – DAY +66

Liam is having a good day. He has been up playing since he woke up from his nap. The last few days he has been eating small amounts of food at lunch and dinner. Still not interested in breakfast. But … Continue reading

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2nd BMT – DAY +62

UPDATE 1:18 pm ~ Liam is in surgery, please continue to PRAY. UPDATE 3:11 pm ~ Liam is out of surgery, in recovery. They said everything went well. Please continue to pray…

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