10/10/2011 Liam’s diagnosis, One year later… by Kristy

One year ago today Liam was diagnosed with HLH. The doctors and nurses worked endlessly to save Liam’s life and they did. If Liam would of went undiagnosed he would not be here now. I will never forget those that saved my baby. With a diagnoses came devastating news he would start his long journey down a road full of a lot of unknown. I’ve never been so scared. His treatment would be chemo and steroids and many other medications along with antibiotics. I never wanted to see my baby go down that road but it has saved his life. It got him to transplant and through transplant. Sometimes in life there are things you don’t want to do but the journey makes us stronger. I am so humbled by the love and support we as a family have received. It’s made this journey easier knowing so many care. My baby boy is alive today because he was diagnosed. I hope to help bring awareness to this awful disease so that every child has a fighting chance against HLH.
Please sign up for the run on October 30, 2011. We are going to continue to do it each year in hopes that it will continue to grow and bring awareness.
Thank you,
Liam’s momma

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