Monthly Archives: January 2012

Courage…

Subject: Kristina updated her status on Facebook. Date: 1/30/2012 12:40:41 A.M. Pacific Standard Time “You will never do anything in this world without courage. It is the greatest quality of the mind next to honor.” -Aristotle”

Posted in Insprirational Quotes | Comments Off

Attention All HLH Families By: Kelly Marsh

http://www.carepages.com/carepages/HannahMarsh/updates/3227161 Posted 1 day ago I am writing this note as an urgent request to reach out to HLH families all over the globe. There are lots of newly diagnosed families with HLH that need our help in making the … Continue reading

Posted in Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis | Tagged , | 2 Comments

Posted on Facebook Group: HLH Family (Survivors & Angels)

Posted by: Kelly Claudine Marsh HLH Family (Survivors & Angels) Shared with Public I am posting this as a general statement, because I am sick to my stomach hearing what doctors are doing in hospitals that don’t have enough experience with … Continue reading

Posted in Uncategorized | Comments Off

Faith…

Subject: updated her status on Facebook. Date: 1/23/2012 10:44:13 A.M. Pacific Standard Time “Faith is taking the first step even if you don’t see the whole staircase. -Martin Luther King, Jr.”

Posted in Insprirational Quotes | Comments Off

The Brave Little Soul By: John Alessi

Subject: Kristina updated her status on Facebook. Date: 1/27/2012 6:32:36 P.M. Pacific Standard Time  ”The Brave Little Soul By: John Alessi Not too long ago in Heaven there was a little soul who took wonder in observing the world. He … Continue reading

Posted in Insprirational Quotes | Comments Off

Isolation – Trying to keeping Liam Safe

Kristy posted a comment in HLH Survivors on Facebook: https://www.facebook.com/#!/groups/HLHSurvivors/ As Liam gets closer to 1 year post BMT there are a lot of emotions going through me. I’m wondering if you kept your child in isolation after 1 year … Continue reading

Posted in Liam's BMT updates, Uncategorized | Comments Off

DAY +243 Liam’s Chimerism Test Results

Subject: Kristina updated her status on Facebook. Date: 1/26/2012 3:44:26 P.M. Pacific Standard Time  Liam’s Chimerism Test Results: “We just wait and see, and hope for the best.” DAY+ 243 – 01/10/12        DNA Chimerism Analysis – Blood (CD3+) T Cell             … Continue reading

Posted in Liam's BMT updates | Comments Off

I was RAISED!! I didn’t just grow up.

Subject: Kristina  updated her status on Facebook. Date: 1/9/2012 11:19:40 A.M. Pacific Standard Time “I was RAISED!! I didn’t just grow up. I was taught to speak when I enter a room, say please & thank you, to have respect … Continue reading

Posted in Insprirational Quotes | Comments Off

Journeys of hope…

Subject: Kristina updated her status on Facebook. Date: 1/14/2012 9:45:33 A.M. Pacific Standard Time  ”HOPE We are all meant for these journeys of hope. Of tenderness of love. Of doing things we never thought we could do.This is where our … Continue reading

Posted in Insprirational Quotes | Comments Off

I want HISTIO classed as a cancer!

Subject: Kristina updated her status on Facebook. Date: 1/14/2012 9:37:15 A.M. Pacific Standard Time  ”I want HISTIO classed as a cancer! I want it acknowledged that histio patients have the same awful treatments as those with cancer-chemo, steroids, surgery etc, … Continue reading

Posted in Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis | Tagged , | Comments Off