Tag Archives: Bone Marrow Registry

Mommy’s beautiful baby boy

Posted in Bone Marrow Transplant, Hemophagocytic lymphohistiocytosis (HLH), Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, HLH, Liam's 2nd BMT updates, Photos | Tagged , , , , , , , , | Comments Off

My super hero! Thank you for the shirt Sheri Kerr

Posted in Bone Marrow Transplant, Hemophagocytic lymphohistiocytosis (HLH), Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, HLH, Liam's 2nd BMT updates, Photos | Tagged , , , , , , | Comments Off

2nd BMT – Day+20 ANC 294 WBC 1.3 Platelets 98

Nana: Today has been a good day. Liam went to sleep last on my lap at 9:30pm. He woke up at 8am when they came in to do his vitals. He did have some leg pain around midnight. But He … Continue reading

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2nd BMT – DAY +11

MOMMY: Day+11~Happy St. Patricks Day! Luck of the Irish, Liam had a ANC of 69!! He did receive his last chemo, so it may go back to 0 for a few days. But still good need

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2nd BMT – DAY +9

MOMMY: Day+9 and Liam is still rocking this transplant! He has had bumps along the way, but his strength leaves me speechless. His liver enzymes went up a little more but they still think it is medication related. It’s a … Continue reading

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2nd BMT – DAY +5

MOMMY: Today has been pretty good, but Liam’s bottom is so raw and he is in a lot of pain. Liam’s ANC is 0 and this now means, possible infections. Im hoping he does not but the possibility is there. I … Continue reading

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2nd BMT – DAY +2 – New Hickman Line placed today

Liam’s in surgery. Just waiting to see my little HLH warriors smile         Before Liams Hickman replacement (above)             Liam is out of surgery (above) MOMMY: Liam has not had a fever this evening. … Continue reading

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DAY -8 ~ Last Clinic Appt before BMT #2

It was a really emotional day for me, just knowing the road ahead for Liam. It was hard to keeps the tear under control, knowing you have to make him sick to make him better. Liam will get his pic … Continue reading

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“Liam’s Journey” Benefit Concert Featuring Mycle Wastman & Friends

“Liam’s Journey” Benefit Concert Featuring Mycle Wastman & Friends http://www.brownpapertickets.com/event/337768 An Intimate Evening of Soulful Sounds with Performances By Mycle Wastman (Season 3 The Voice), Caety Sagoian and Taryn Cross Saturday, March 9, 2013 Northwood Hall Event Center 3240 Northwest … Continue reading

Posted in Fundraising for Liam, Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, HLH | Tagged , , , , , | Comments Off

Liam at his pre bone marrow transplant evaluation

  BMT #2 – Liam will receive the same conditioning that he received for his 1st transplant, plus they will be adding Anti-thymocyte globulin (ATG) for 3 days. They said this has been added to help increase his engraftment. His 2nd Bone Marrrow Transplant is … Continue reading

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