The family and friends of our little warrior, Liam Smith are uniting to raise support in helping him and his family as they fight to overcome Liam’s rare, but life threatening disease. We hope you will join us.
By Mail to:
Liam R. Smith
P.O. Box 1183
Woodland, WA 98674
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This was taken 12 days before Liam was admitted to the Emergency Room.
34 days after starting HLH-2004 Protocol, chemotherapy and steroid treatment.
ANC (Absolute Neutrophil Count) 0
October 17, 2012
Today, I was admitted to the hospital to start the preparation to receive donor cells from my big brother Hunter. Please keep us both in your prayers.
TOTAL PAGE VIEWSThank you for visiting Liam's blog.
Seattle Children’s Hospital
4800 Sand Point Way NE
Seattle, WA 98105
Dr. Jean Sanders and Liam
Dr. Jean Sanders built the pediatric transplant program at Fred Hutchinson Cancer Research Center and provided exemplary medical care and compassion for thousands of patients and their families. During her career she trained more than 90 specialists in her field and authored over 300 scientific publications. She also chaired multiple cooperative research group studies and served as advisor for many medical and scientific organizations including the Children's Oncology Group, the National Childhood Cancer Foundation, the American Academy of Pediatrics and National Institutes of Health.
Click on the photo to read about Dr. Jean Sanders. You will be redirected to http://questmagazine.wordpress.com/2012/06/11/pediatric-transplant-pioneer-jean-sanders-built-the-hutchinson-centers-and-the-nations-pediatric-transplant-program/
Seattle Cancer Care Alliance
825 Eastlake Avenue E.
Seattle, WA 98109
1354 Aloha St.
Seattle, WA 98109
1335 Aloha St. (under the clinic)
Seattle, WA 98109
Need help finding SCCA?
Call (206) 288-SCCA (7222) or
(800) 804-8824 .
We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.
- The Birthday Boy…
- September is Histio Awareness
- DAY +231 ~ LIAM’S CHIMERISM TEST RESULTS 2nd BMT
- DAY +218 – Three years ago today…
- DAY +195 Clinic Appointment
- The Birthday Boy…
- LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156
- 2nd BMT – DAY +153 update – 5 months post Transplant
- 2nd BMT – DAY +132 ~ Liam is doing good.
- 2nd BMT – DAY +110 – Coming Home :)
- 2nd BMT – DAY +84
- 2nd BMT – DAY +82
- Liam learning to ride his bicycle (Video Link)
- Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases
- Liam is my HERO…
- 2nd BMT – DAY +79 Mommy’s Superman
- Mommy’s beautiful baby boy
- 2nd BMT – DAY +70
- 2nd BMT – DAY +67
- 2nd BMT – DAY +66
- Nana on My Hero… FB post by Mommy
- Ann on From a friends page..
- Auntie Deb on DAY+ 606
- Diane Balch on DAY +603
- Ann on DAY +600 UPDATE
- Nada Collins on Still no real answers…
- Debra Tsugawa on Liam is going to receive Hunters cells today, please pray… updates from mommy
- Nana on Today you can tell Liam is not feeling a 100% :(
- Ann on Today you can tell Liam is not feeling a 100% :(
- Ann on Picc Line placement today : (
- 1st BMT – DAY +0 Transplant Day – Photos
- 1st BMT – Journal Updates to Day +50
- 1st BMT – Liam’s Chimerism Engraftment Results
- Bone Marrow Registry Info
- Fundraising for Liam
- HLH Stories
- Kristy’s Twitter Updates
- What is HLH or FHLH?
- Alexandra H. Filipovich, MD – special interest in histiocytic disorders, especially Hemophagocytic Lymphohistiocytosis (HLH)
- Applying for Social Security Benefits for histiocytosis.
- Diagnostic criteria for hemophagocytic lymphohistocytosis (HLH)
- Diaper Rash Care & Home Remedies
- What are the symptoms of adrenal insufficiency?
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Monthly Archives: February 2012
Kristy updated her twitter status: 2day is Rare Disease Day My son & many others have fought so hard against Histio I hope some1 finds it n there heart 2 help bring awareness
Kristy updated her Facebook status: HLH is now being diagnosed in young adults and older awareness is so important. It’s not labeled as CANCER but treated with the same meds.
Kristina updated her FB status: “Thank you to everyone that went to New York to help raise awareness for Histio. It means so much to me! I hope next year I can join you all. I was wonder if anyone … Continue reading
Please help raise Histio Awareness RARE DISEASE DAY PRESS RELEASE (PDF File) NEXT YEAR’S CAMPAIGN WILL BE HELD IN NYC FROM FEBRUARY 24-25, 2012. PLEASE CLICK ON THE LINK BELOW FOR DETAILS! https://www.facebook.com/#!/events/252239901479695/ http://www.liamslighthousefoundation.org/awareness_campaign.html Liam’s Lighthouse Foundation 3rd Annual Histiocytosis Awareness … Continue reading
Liam is all done with his Tacrolimus! I hope he will never need it again. We will have to watch him closely for GVHD.
‘Crisis’: Supplies of life-saving drug used to treat children could run out in 2 weeks www.msnbc.msn.com A medicine to treat childhood leukemia is in such short supply that hospitals may exhaust their stores within 2 weeks, leaving children at risk … Continue reading
Kristy’s Update – Feb. 9, 2012 Liam weighed 22lb 11.3oz, 30.4 inches all labs were in the normal range he will b off immune suppressant Feb. 16 & starting hydro ween!
Kristina updated her Facebook status: 2/3/2012 12:12:04 A.M. Pacific Standard Time “Nurses are being scorned for being late with medicines by one minute sometimes, yet they are holding their bladder because they don’t have time to use the restroom, starving … Continue reading
When I write in my blog I write my try emotions in hopes that other family’s who have a child with a life threatening illness will see there not alone in there thoughts. I haven’t posted in here for a … Continue reading
Subject: Kristina updated her status Date: 1/31/2012 11:49:02 P.M. Pacific Standard Time “the best response to “-at least it’s not cancer”. -Yes, you’re right! Thank God! It’s just Histiocytosis, also known as the “You’ve got cancer in your autoimmune system”-disease, … Continue reading