Category Archives: Doctors Appointments

DAY +195 Clinic Appointment

DAY +195 ~ Laim had an appointment in Seattle yesterday. His labs looked good but his liver is still slightly elevated (ALT). He was scheduled to have a bone marrow biopsy today. But after discussing it with Dr. C we … Continue reading

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LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156

Chimerism Whole Bone Marrow Biopsy DAY +28     04/03/2013     100% donor Noa     0% Liam     0% donor Hunter DAY +84     05/29/2013     79% donor Noa       21% Liam   0% donor Hunter ——————————————————————————————- DNA Sorted Chimerism Peripheral Blood (CD3+) T Cell, … Continue reading

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2nd BMT – DAY +153 update – 5 months post Transplant

DAY +153 update ~ It’s been awhile since the last update. Liam is doing good, today he is 5 months post transplant. He had 2 appointments last week. He had to have an IVG infusion on last Monday, to help … Continue reading

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2nd BMT – DAY +132 ~ Liam is doing good.

July 9 DAY +132 ~ Liam is doing good.  It has been a couple of weeks since I last updated. Things have been good. Just trying to get back to some sense of normal. Trying to manage everything, somedays are easier … Continue reading

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2nd BMT – DAY +84

Today was a long day. He was NPO – nothing by mouth from 1am until after is Bone marrow & Skin Biopsy around 11am. He had to be at the lab at 7am, we ended up be about 15 mins … Continue reading

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BMT # 2 – The Journey ahead…

Yesterday was IVIG and it turned out being a 6 hour day. Liam also had a pic dressing change along with labs and meeting with the team. Liam will get his Hickman placed on the 27th and will be admitted. … Continue reading

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Liam at his pre bone marrow transplant evaluation

  BMT #2 – Liam will receive the same conditioning that he received for his 1st transplant, plus they will be adding Anti-thymocyte globulin (ATG) for 3 days. They said this has been added to help increase his engraftment. His 2nd Bone Marrrow Transplant is … Continue reading

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Noa’s Donor work up

Noa’s appointments went well. I am so proud of his courage and selfishness. I should get the results of his tests in a few days. It was strange to go to an appointment without Liam, but it was good to … Continue reading

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CLINIC APPOINTMENT

Update from Mommy: Liams appointments went good. He had nutrition, team, pic dressing change, and lab draw. I also learned Noa will need to be here the 11th, to start his donor work up. Liam will have a bone marrow … Continue reading

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Sometimes I really do not understand…

Sometimes I really do not understand why things happen the way they do, but it will not break me. If I’m blessed to wake up tomorrow, I will continue to grow and learn from life’s lessons. God please continue to … Continue reading

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