Monthly Archives: December 2011

DAY +223

Liam is scheduled 2 have his hickman out on Jan.17 I’m so nervous but excited @ the same time keep him in your prayers 4 no complications

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DAY +221

Kristina Smith posted in Liam’s Journey – HLH Warrior – Facebook Group.   10:50pm Dec 20, 2011 Liam weighs 21lbs 4.6oz so he is still going up in weight he is now in the 10% which is great because before … Continue reading

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DAY +218

FB Update from Kristina: Saturday, December 17th, 2011 Liams next appointment is on the 20th. We will discuss removing his Hickman when we go to Seattle. They will draw an IGG level to see if he will need IVIG if … Continue reading

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Time is our most precious gift…

Kristy’s Facebook post Time is our most precious gift… Everyday we are each given the same amount of time in a day. We each get 24 hours. Some people waste their time, and in some cases other people can be … Continue reading

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DAY +211 – Happy 15 months to Liam!

Update from Kristy – Saturday at 10:16pm – December 10, 2011 Happy 15 months to Liam! You amaze me every day and feel my heart with so much happiness.  Wearing Papa’s hat!

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DAY +209

Kristy’s Twitter Update: I spoke with Liam’s dr in Seattle & he said not be worried that his t-cell has went up & that is most important. They will check again n Jan     · @Mysticlimber13 on Twitte · December 8 … Continue reading

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Please say a prayer for Little Ryan’s Family

Terri Smith posted in Liam’s Journey – HLH Warrior.  10:27am Dec 6 Our hearts are broken over the loss of Ryan and our hearts and prayers go out to his mommy and daddy , Holly and Dusty-xoxo He had just … Continue reading

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Liam’s Chimerism Results

Liams graft results aren’t what we wanted:( CD3 Tcell 76% donor CD33 10% donor CD56 NK function 40% donor CD19 8% nothing seems 2 make sense (about 31 minutes ago)   I have so much anger right now. I’m paralyzed … Continue reading

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Twitter Updates: December4-5, 2011

I love waking up to mornings like this! (about 1 day ago) I go 2 amazon.com 2 buy 2 items =$60.00 I get 2 checkout & they were going 2 charge $30.00 n shipping! They are crazy! I wasn’t paying … Continue reading

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