Tag Archives: Hemophagocytic Lymphohistiocytosis

The Birthday Boy…

A blessing each and everyday. We love you Liam to the Moon and Back 5 times…

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September is Histio Awareness

 ”Please help us raise awareness” To learn more about HLH, go to www.histio.org These are some photos of Liam before, during and after his 2nd Bone Marrow Transplant for HLH also know as Hemophagocytic Lymphohistiocytosis, a life-threatening immunodeficiency. In patients with … Continue reading

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DAY +231 ~ LIAM’S CHIMERISM TEST RESULTS 2nd BMT

Liam’s engraftment results. The results for his 1st and 2nd Transplant results. Feeling grateful and very blessed that the results are higher at this point compared to his 1st transplant. Please continue to pray that his results will stay stable … Continue reading

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DAY +195 Clinic Appointment

DAY +195 ~ Laim had an appointment in Seattle yesterday. His labs looked good but his liver is still slightly elevated (ALT). He was scheduled to have a bone marrow biopsy today. But after discussing it with Dr. C we … Continue reading

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The Birthday Boy…

His smile says it all, he LOVES his new tractor from Mommy, Nana and Papa.

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LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156

Chimerism Whole Bone Marrow Biopsy DAY +28     04/03/2013     100% donor Noa     0% Liam     0% donor Hunter DAY +84     05/29/2013     79% donor Noa       21% Liam   0% donor Hunter ——————————————————————————————- DNA Sorted Chimerism Peripheral Blood (CD3+) T Cell, … Continue reading

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2nd BMT – DAY +153 update – 5 months post Transplant

DAY +153 update ~ It’s been awhile since the last update. Liam is doing good, today he is 5 months post transplant. He had 2 appointments last week. He had to have an IVG infusion on last Monday, to help … Continue reading

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2nd BMT – DAY +132 ~ Liam is doing good.

July 9 DAY +132 ~ Liam is doing good.  It has been a couple of weeks since I last updated. Things have been good. Just trying to get back to some sense of normal. Trying to manage everything, somedays are easier … Continue reading

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2nd BMT – DAY +84

Today was a long day. He was NPO – nothing by mouth from 1am until after is Bone marrow & Skin Biopsy around 11am. He had to be at the lab at 7am, we ended up be about 15 mins … Continue reading

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Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases

Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases Source: http://txch.org/cancer-center/histiocytosis-program/research/spit-for-a-cure-new-study-to-define-the-role-of-inheritance-in-histiocytic-diseases/ The blood stem cell matures through different pathways to produce many different types of histiocytes, now called dendritic cells (DC) that are central to … Continue reading

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