Tag Archives: Familial Hemophagocytic Lymphocytosis

September is Histio Awareness

 ”Please help us raise awareness” To learn more about HLH, go to www.histio.org These are some photos of Liam before, during and after his 2nd Bone Marrow Transplant for HLH also know as Hemophagocytic Lymphohistiocytosis, a life-threatening immunodeficiency. In patients with … Continue reading

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DAY +195 Clinic Appointment

DAY +195 ~ Laim had an appointment in Seattle yesterday. His labs looked good but his liver is still slightly elevated (ALT). He was scheduled to have a bone marrow biopsy today. But after discussing it with Dr. C we … Continue reading

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The Birthday Boy…

His smile says it all, he LOVES his new tractor from Mommy, Nana and Papa.

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2nd BMT – DAY +153 update – 5 months post Transplant

DAY +153 update ~ It’s been awhile since the last update. Liam is doing good, today he is 5 months post transplant. He had 2 appointments last week. He had to have an IVG infusion on last Monday, to help … Continue reading

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Liam learning to ride his bicycle (Video Link)

Liam learning to ride his bicycle. He had a smile from ear to ear. He said, “GO FAST” PRICELESS MOMENTS… Liam – May 26, 2013 12:16pm If the video doesn’t work click on this link to view video. You will be … Continue reading

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Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases

Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases Source: http://txch.org/cancer-center/histiocytosis-program/research/spit-for-a-cure-new-study-to-define-the-role-of-inheritance-in-histiocytic-diseases/ The blood stem cell matures through different pathways to produce many different types of histiocytes, now called dendritic cells (DC) that are central to … Continue reading

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2nd BMT – DAY +79 Mommy’s Superman

My Superman! Love him more then words can express… Liam was released from the hospital on Wednesday (5/22). He was waiting patiently by the door to go. It was a bitter sweet moment. Excited that he is doing well enough … Continue reading

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Mommy’s beautiful baby boy

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2nd BMT – DAY +70

Future Doctor ~`Blood cultures are still negative. Tonight is the last doses of meropenum. They will wait one day, than take blood cultures. Praying that the test will continue to be negative. He will be on the bactrim longer. He … Continue reading

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2nd BMT – DAY +67

Happy Mother”s Day from Liam (4 photos)   Liam is having a great day. He slept well last night. Fell asleep around 10:30pm, and didn’t wake up until 9am. He woke up with a beautiful smile and happy. The lab cultures … Continue reading

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