Tag Archives: Primary Hemophagocytic Hymphohistiocytosis

The steroids have caused lots of weight gain.

First day out of the Hospital The steroids have been really hard on Liam. He hasn’t been sleeping well at night.

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06/19/12 – Clinic Appointment

Liam had his monthly check on Tuesday the 19th. He had a regular check up, labs, weight, height, nutrition, pharmacy, doctor. Weight 24 lbs, height 32.1 inches. He is still gaining in both areas They did his Chimerism Analysis to see if … Continue reading

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Today Liam is 13 months post BMT!

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Liam BMT Birthday – 1 year post Transplant

Today it has be one year since Liam received his Bone Marrow Transplant from his brother Hunter. We feel so blessed to be at this milestone in Liam’s life. We are so thankful to God for this blessing. He blessed … Continue reading

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2011 National Lyme Conference summary – Ehrlichiosis and HLH – Lyme Disease

Dr. Andrew Walter reported on Ehrlichiosis and Hemophagocytic Lymphohistiocytosis (HLH) in cases of children diagnosed in Delaware. Ehrlichiosis is an uncommon tick borne disease seen in the mid-Atlantic area and therefore clinicians need to maintain a heightened vigilance. Ticks in … Continue reading

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