Monthly Archives: February 2013

DAY -6 ~ Chemo Condition starts today

Liam was uncomfortable yesterday He seems to be in less pain today. He threw up last night and couldn’t sleep. The conditioning for his bone marrow transplant will start shortly. I had a long discussion with the team today. Trying … Continue reading

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DAY -7 ~ Surgery today, please pray…

we arrived at Children’s Hospital this morning, but we were bumped and are now waiting to find out when he will have his surgery. Please say a prayer for the new born baby who is in emergency surgery right now. … Continue reading

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DAY -8 ~ Last Clinic Appt before BMT #2

It was a really emotional day for me, just knowing the road ahead for Liam. It was hard to keeps the tear under control, knowing you have to make him sick to make him better. Liam will get his pic … Continue reading

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“Liam’s Journey” Benefit Concert Featuring Mycle Wastman & Friends

“Liam’s Journey” Benefit Concert Featuring Mycle Wastman & Friends http://www.brownpapertickets.com/event/337768 An Intimate Evening of Soulful Sounds with Performances By Mycle Wastman (Season 3 The Voice), Caety Sagoian and Taryn Cross Saturday, March 9, 2013 Northwood Hall Event Center 3240 Northwest … Continue reading

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BMT # 2 – The Journey ahead…

Yesterday was IVIG and it turned out being a 6 hour day. Liam also had a pic dressing change along with labs and meeting with the team. Liam will get his Hickman placed on the 27th and will be admitted. … Continue reading

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Genetic Sequencing As Diagnostic Tool; Cord Blood Stem Cells As Therapeutic CurE

SOURCE: http://www.stemcelldigest.net/stemcell/2010/12/genetic-sequencing-as-diagnostic-tool-cord-blood-stem-cells-as-therapeutic-cure.html At the age of 3, Nicholas Volker of Monona, Wisconsin, had already endured more than 100 surgeries, but was progressively getting sicker. His intestines continued to swell and more abscesses formed, and doctors concluded they were dealing with an … Continue reading

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Prayers going out to the family of HLH Angel Micheal Leneski age 42, father of 5

Source: http://manpowerillini.blogspot.com/2013/02/micheal-leneski-great-father-good-friend.html FRIDAY, FEBRUARY 15, 2013 Micheal Leneski – Devoted husband, loving father, a great friend We just lost a good friend today, Micheal Lenski. I met him on August 15, 1989, when we joined the army. We got to … Continue reading

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Heavy Hearts… 2 HLH children have earned their wings :(

Please pray for their family’s.  Feb. 5, 2013 – Angel: Alex Hilton. 3 years old. http://www.savemyalex.com/index.html  Feb. 12, 2013 – Angel: Lacey Horwitch, https://www.facebook.com/laceyhorwitch  

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Liam at his pre bone marrow transplant evaluation

  BMT #2 – Liam will receive the same conditioning that he received for his 1st transplant, plus they will be adding Anti-thymocyte globulin (ATG) for 3 days. They said this has been added to help increase his engraftment. His 2nd Bone Marrrow Transplant is … Continue reading

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Noa’s Donor work up

Noa’s appointments went well. I am so proud of his courage and selfishness. I should get the results of his tests in a few days. It was strange to go to an appointment without Liam, but it was good to … Continue reading

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