Monthly Archives: May 2012

Liam’s first time playing outside…

He was very excited to be going outside for the first time for a walk!! : He has never walked around outside before. He has rode the 4-wheeler, and went for walks in a pack, but never by himself walking. … Continue reading

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May 14, 2012 – Liver labs are going down!!

Kristina update her FB status: Blood draw done! Leslie did an amazing job ♥ her everyone there said Liam is my little twin they couldn’t believe how much he looks like me Update: Liver labs are going down!! They test … Continue reading

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Liam BMT Birthday – 1 year post Transplant

Today it has be one year since Liam received his Bone Marrow Transplant from his brother Hunter. We feel so blessed to be at this milestone in Liam’s life. We are so thankful to God for this blessing. He blessed … Continue reading

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Seattle Children’s Hospital performs Kelly Clarkson’s song “Stronger”

The hemoncology floor of Seattle Children’s Hospital performs Kelly Clarkson’s song “Stronger” NEW! Check out a quick behind the scenes clip of how the video was made http://www.youtube.com/watch?v=b4w1beZg8mM  

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2011 National Lyme Conference summary – Ehrlichiosis and HLH – Lyme Disease

Dr. Andrew Walter reported on Ehrlichiosis and Hemophagocytic Lymphohistiocytosis (HLH) in cases of children diagnosed in Delaware. Ehrlichiosis is an uncommon tick borne disease seen in the mid-Atlantic area and therefore clinicians need to maintain a heightened vigilance. Ticks in … Continue reading

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DAY +355 – Updates

Update – April 30, 2012 Just got the call from dr the results are not back yet but if the t cell comes back and they are not new cells Liam will need a DLI They also said we will … Continue reading

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Faith. Hope, Love – Another family’s HLH Story

Link from Kelly Claudine Marsh Please watch this link. This is a little girl Maddie that went through BMT… This was their second child that became ill with HLH. After having two kids that are fine and no known gene, they … Continue reading

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