Category Archives: Liam’s BMT updates

DAY -5

Liam is day -5 and received 2 different chemos today. He is crabby and still having loose stools. He is charming all the nurses and still smiling at times he is amazing and such a fighter. Tomorrow he will receive … Continue reading

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DAY -6 ~ Chemo Condition starts today

Liam was uncomfortable yesterday He seems to be in less pain today. He threw up last night and couldn’t sleep. The conditioning for his bone marrow transplant will start shortly. I had a long discussion with the team today. Trying … Continue reading

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DAY -8 ~ Last Clinic Appt before BMT #2

It was a really emotional day for me, just knowing the road ahead for Liam. It was hard to keeps the tear under control, knowing you have to make him sick to make him better. Liam will get his pic … Continue reading

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BMT # 2 – The Journey ahead…

Yesterday was IVIG and it turned out being a 6 hour day. Liam also had a pic dressing change along with labs and meeting with the team. Liam will get his Hickman placed on the 27th and will be admitted. … Continue reading

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Liam at his pre bone marrow transplant evaluation

  BMT #2 – Liam will receive the same conditioning that he received for his 1st transplant, plus they will be adding Anti-thymocyte globulin (ATG) for 3 days. They said this has been added to help increase his engraftment. His 2nd Bone Marrrow Transplant is … Continue reading

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Noa’s Donor work up

Noa’s appointments went well. I am so proud of his courage and selfishness. I should get the results of his tests in a few days. It was strange to go to an appointment without Liam, but it was good to … Continue reading

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CLINIC APPOINTMENT

Update from Mommy: Liams appointments went good. He had nutrition, team, pic dressing change, and lab draw. I also learned Noa will need to be here the 11th, to start his donor work up. Liam will have a bone marrow … Continue reading

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Abnormal cells…

Update from Mommy: I got the call from the doctor about the cell abnormality in Liam’s cells. Its still there and Liam will need the harsher BMT. With this he will have to have 100% engraftment of donor cells from … Continue reading

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Chemo #5

Update from mommy: Not a good night for Liam He’s not feeling well, not sure if its, the chemo, steroids, or maybe something else. I can only hope it’s one of the first two. I really, just wish, he could … Continue reading

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9 am – Morning meds :(

Some of them don’t taste good at all. So we add grape juice to it, so he doesn’t gag as bad.

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