He loves ELMO and Winnie the Pooh, motorcycles, dump trucks, excavators, and bulldozers.
Got Liam a VTech’s InnoTab 2S Wi-Fi Learning App Tablet. It will be great for him when he is in the hospital for his Bone Marrow Transplant. I hope it help keep him busy. They have lots of Elmo stuff for him to download. I just can’t wait for him to see it 🙂 http://www.vtechkids.com/product/detail/12423/InnoTab_2S_Wi_Fi_Learning_App_Tablet
Update from Mommy: I got the call from the doctor about the cell abnormality in Liam’s cells. Its still there and Liam will need the harsher BMT. With this he will have to have 100% engraftment of donor cells from his brother, so this will be gone.
Update from mommy: Not a good night for Liam 🙁 He’s not feeling well, not sure if its, the chemo, steroids, or maybe something else. I can only hope it’s one of the first two. I really, just wish, he could feel good again.
Some of them don’t taste good at all. So we add grape juice to it, so he doesn’t gag as bad.
First day out of the Hospital 🙂 The steroids have been really hard on Liam. He hasn’t been sleeping well at night.
“In the midst of our suffering, it can often be difficult to glimpse the glory to come. Suffering is so immediate and can seem so permanent that we can easily lose sight of the big picture. The pain can be so crushing and our hearts can be so broken that we just don’t understand why! Why me?
Whenever that question tends to fill my mind, I hear Him whisper to my heart, ‘”why not you? Just trust Me!'”
–Anne Graham Lotz
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Borrower this from aother HLH carepage. Thanks for posting this Lee Anne B.
http://www.caringbridge.org/visit/ethanlee/journal/9/createdAt/asc
Liam did not sleep well at all last night and has been very uncomfortable and upset. They have him on scheduled Ativan and that helps a little but not enough. Liam will only go to me, unless his papa is here. That has been hard, because I cannot calm him down. Dex is a horrible steroid, it takes the child you know and makes them so miserable, unconsoulable, angry, emotional, and sad. Roid rage is a parents nightmare. I feel so bad and helpless. He also has a very upset tummy and got a ultrasound today, that required he could not eat or drink anything for 3 hours. That was not fun for him, but the didn’t see anything alarming, so that’s good. He will be getting a spinal tap and a bone marrow biopsy, either tomorrow or Monday. They want to make sure he doesn’t have HLH in the spinal fluid. He will also get chemo tomorrow. I just hope, he gets to feeling better. This is heartbreaking to watch.
I wish I had really good things to post, but the truth is Liam doesn’t feel good 🙁 He is nauseous and tired. It seems like I’m holding my breath, just to catch a glimpse of him feeling good. I think I have to except that it may be awhile before I see my little man happy again.
