Update from mommy

Liam did not sleep well at all last night and has been very uncomfortable and upset. They have him on scheduled Ativan and that helps a little but not enough. Liam will only go to me, unless his papa is here. That has been hard, because I cannot calm him down. Dex is a horrible steroid, it takes the child you know and makes them so miserable, unconsoulable, angry, emotional, and sad. Roid rage is a parents nightmare. I feel so bad and helpless. He also has a very upset tummy and got a ultrasound today, that required he could not eat or drink anything for 3 hours. That was not fun for him, but the didn’t see anything alarming, so that’s good. He will be getting a spinal tap and a bone marrow biopsy, either tomorrow or Monday. They want to make sure he doesn’t have HLH in the spinal fluid. He will also get chemo tomorrow. I just hope, he gets to feeling better. This is heartbreaking to watch.

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