Category Archives: Uncategorized

A great story – Superhero’s, I friend shared this with me. Thanks, Sue

KPTV – FOX 12

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2nd BMT – DAY +25 Happy Easter Everyone :)

I hope everyone has a blessed day.   

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Genetic Sequencing As Diagnostic Tool; Cord Blood Stem Cells As Therapeutic CurE

SOURCE: http://www.stemcelldigest.net/stemcell/2010/12/genetic-sequencing-as-diagnostic-tool-cord-blood-stem-cells-as-therapeutic-cure.html At the age of 3, Nicholas Volker of Monona, Wisconsin, had already endured more than 100 surgeries, but was progressively getting sicker. His intestines continued to swell and more abscesses formed, and doctors concluded they were dealing with an … Continue reading

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Prayers going out to the family of HLH Angel Micheal Leneski age 42, father of 5

Source: http://manpowerillini.blogspot.com/2013/02/micheal-leneski-great-father-good-friend.html FRIDAY, FEBRUARY 15, 2013 Micheal Leneski – Devoted husband, loving father, a great friend We just lost a good friend today, Micheal Lenski. I met him on August 15, 1989, when we joined the army. We got to … Continue reading

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Liam’s favorite things…

He loves ELMO and Winnie the Pooh, motorcycles, dump trucks, excavators,  and bulldozers. Got Liam a  VTech’s InnoTab 2S Wi-Fi Learning App Tablet.  It will be great for him when he is in the hospital for his Bone Marrow Transplant.  I … Continue reading

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Update

They took Liam off his morphine drip and his belly went from 52.5cm to 48cm. They are going to start chemo in a few days to get his HLH into total remission.

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Strength…

Seek the LORD and his strength;seek his presence continually! ‎1 Chronicles 16:11

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A friend posted this song for Kristy…

Life ain’t always beautiful Sometimes it’s just plain hard Life can knock you down, it can break your heart Life ain’t always beautiful You think you’re on your way And it’s just a dead end road at the end of … Continue reading

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Doctor called today

Drs called Liam has Rhino Virus pls pray it does not go into his lungs or trigger HLH

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Ronan’s Song – His Mom’s Interview about Ronan and the song by Taylor Swift

Amazing song for an amazing little man. Taylor Swift is such a sweet person to be a voice for Ronan and his mom, it is so important to raise awareness about Cancer and so many rare diseases like HLH.   … Continue reading

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