Category Archives: Liam’s 2nd BMT updates

The Birthday Boy…

A blessing each and everyday. We love you Liam to the Moon and Back 5 times…

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September is Histio Awareness

 ”Please help us raise awareness” To learn more about HLH, go to www.histio.org These are some photos of Liam before, during and after his 2nd Bone Marrow Transplant for HLH also know as Hemophagocytic Lymphohistiocytosis, a life-threatening immunodeficiency. In patients with … Continue reading

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DAY +231 ~ LIAM’S CHIMERISM TEST RESULTS 2nd BMT

Liam’s engraftment results. The results for his 1st and 2nd Transplant results. Feeling grateful and very blessed that the results are higher at this point compared to his 1st transplant. Please continue to pray that his results will stay stable … Continue reading

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DAY +218 – Three years ago today…

DAY +218 ~ Three years ago today Liam was diagnosed with HLH – Hemophagocytic Lymphohistiocytosis. I remember be calling into the conference room with Dr. L and Dr. O and the Chaplin. The fear that was running through my mind … Continue reading

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DAY +195 Clinic Appointment

DAY +195 ~ Laim had an appointment in Seattle yesterday. His labs looked good but his liver is still slightly elevated (ALT). He was scheduled to have a bone marrow biopsy today. But after discussing it with Dr. C we … Continue reading

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The Birthday Boy…

His smile says it all, he LOVES his new tractor from Mommy, Nana and Papa.

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LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156

Chimerism Whole Bone Marrow Biopsy DAY +28     04/03/2013     100% donor Noa     0% Liam     0% donor Hunter DAY +84     05/29/2013     79% donor Noa       21% Liam   0% donor Hunter ——————————————————————————————- DNA Sorted Chimerism Peripheral Blood (CD3+) T Cell, … Continue reading

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2nd BMT – DAY +153 update – 5 months post Transplant

DAY +153 update ~ It’s been awhile since the last update. Liam is doing good, today he is 5 months post transplant. He had 2 appointments last week. He had to have an IVG infusion on last Monday, to help … Continue reading

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2nd BMT – DAY +132 ~ Liam is doing good.

July 9 DAY +132 ~ Liam is doing good.  It has been a couple of weeks since I last updated. Things have been good. Just trying to get back to some sense of normal. Trying to manage everything, somedays are easier … Continue reading

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2nd BMT – DAY +110 – Coming Home :)

 Things have been so busy the last 2 weeks. We had an appointment June 4th, at that appointment they said that Liam wouldn’t be going home at Day +100 because of the gut GVHD. Than the next appointment they said … Continue reading

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