Faith. Hope, Love – Another family’s HLH Story

Please watch this link. This is a little girl Maddie that went through BMT… This was their second child that became ill with HLH. After having two kids that are fine and no known gene, they did not ever dream after losing their little boy to HLH, that they would have to go though BMT with their little girl, AMAZING video, please watch!

In 2008 we lost our son to a rare disease alle Hemophagocytic lymphohistiocytosis. We were told since it only affect 1 in 1.2 million and have 2 healthy kids and no gens for this it wont happen again. So we did and it did happen again. She is now 3 and fought through her life saving bone marrow transplant.


This entry was posted in Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis and tagged , , , , . Bookmark the permalink.

Comments are closed.