Tag Archives: Hemophagocytic lymphohistiocytosis (HLH)

2nd BMT – DAY +65

Our little warrior sound asleep on Nana’s tummy  Liam has GVHD of the gut They will be starting him on steroids today. Please pray the steroids work. Thank you Graft-versus-host disease (GVHD) is a complication that can occur after a … Continue reading

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2nd BMT – DAY +62

UPDATE 1:18 pm ~ Liam is in surgery, please continue to PRAY. UPDATE 3:11 pm ~ Liam is out of surgery, in recovery. They said everything went well. Please continue to pray…

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2nd BMT – DAY +61

  The doctors have decided they want Liams Hickman out. They say it is to risky to keep it in. So tomorrow morning he will get it out and a PIC line put in. Please say a prayer that it … Continue reading

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2nd BMT – DAY +59

  Liam is feeling better each day. Yesterday he had to receive a blood transfusion. He will be on antibiotics for 14 days. The doctors are pleased with his recovery. He did get sick a couple of times yesterday, but … Continue reading

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2nd BMT – DAY +57

Update: Liam has a blood infection and is getting antibiotics. Still fighting fevers and throwing up along with diarrhea. Thank you for all the prayers and please don’t stop he’s not out of the woods yet 

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2nd BMT – DAY +51

Our little warrior is just starting to wake up this morning. He wasn’t wanting to go to sleep last night. He was wanting to tell mommy big stories. He is doing good. Still trying to get him to start eating … Continue reading

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2nd BMT – Day +28 Results- Chimerism Analysis

Day +28 – DNA Chimerism Analysis – April 2013 Post Transplant Peripheral Blood CD3+ t-cells ~ 16% donor Hunter, 42% donor Noa, 42% Liam CD33+ myeloid cells ~ 0% donor Hunter, 100% donor Noa, 0% Liam CD56+ NK cells ~ … Continue reading

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2nd BMT – DAY +6

Liam just threw up We had to go up on pain meds but he’s still smiling He’s such a warrior! Day +6 and still doing well.

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DAY -5

Liam is day -5 and received 2 different chemos today. He is crabby and still having loose stools. He is charming all the nurses and still smiling at times he is amazing and such a fighter. Tomorrow he will receive … Continue reading

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The steroids have caused lots of weight gain.

First day out of the Hospital The steroids have been really hard on Liam. He hasn’t been sleeping well at night.

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