The family and friends of our little warrior, Liam Smith are uniting to raise support in helping him and his family as they fight to overcome Liam’s rare, but life threatening disease. We hope you will join us.
By Mail to:
Liam R. Smith
P.O. Box 1183
Woodland, WA 98674
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This was taken 12 days before Liam was admitted to the Emergency Room.
34 days after starting HLH-2004 Protocol, chemotherapy and steroid treatment.
ANC (Absolute Neutrophil Count) 0
October 17, 2012
Today, I was admitted to the hospital to start the preparation to receive donor cells from my big brother Hunter. Please keep us both in your prayers.
TOTAL PAGE VIEWSThank you for visiting Liam's blog.
Seattle Children’s Hospital
4800 Sand Point Way NE
Seattle, WA 98105
Dr. Jean Sanders and Liam
Dr. Jean Sanders built the pediatric transplant program at Fred Hutchinson Cancer Research Center and provided exemplary medical care and compassion for thousands of patients and their families. During her career she trained more than 90 specialists in her field and authored over 300 scientific publications. She also chaired multiple cooperative research group studies and served as advisor for many medical and scientific organizations including the Children's Oncology Group, the National Childhood Cancer Foundation, the American Academy of Pediatrics and National Institutes of Health.
Click on the photo to read about Dr. Jean Sanders. You will be redirected to http://questmagazine.wordpress.com/2012/06/11/pediatric-transplant-pioneer-jean-sanders-built-the-hutchinson-centers-and-the-nations-pediatric-transplant-program/
Seattle Cancer Care Alliance
825 Eastlake Avenue E.
Seattle, WA 98109
1354 Aloha St.
Seattle, WA 98109
1335 Aloha St. (under the clinic)
Seattle, WA 98109
Need help finding SCCA?
Call (206) 288-SCCA (7222) or
(800) 804-8824 .
We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.
- The Birthday Boy…
- September is Histio Awareness
- DAY +231 ~ LIAM’S CHIMERISM TEST RESULTS 2nd BMT
- DAY +218 – Three years ago today…
- DAY +195 Clinic Appointment
- The Birthday Boy…
- LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156
- 2nd BMT – DAY +153 update – 5 months post Transplant
- 2nd BMT – DAY +132 ~ Liam is doing good.
- 2nd BMT – DAY +110 – Coming Home :)
- 2nd BMT – DAY +84
- 2nd BMT – DAY +82
- Liam learning to ride his bicycle (Video Link)
- Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases
- Liam is my HERO…
- 2nd BMT – DAY +79 Mommy’s Superman
- Mommy’s beautiful baby boy
- 2nd BMT – DAY +70
- 2nd BMT – DAY +67
- 2nd BMT – DAY +66
- Nana on My Hero… FB post by Mommy
- Ann on From a friends page..
- Auntie Deb on DAY+ 606
- Diane Balch on DAY +603
- Ann on DAY +600 UPDATE
- Nada Collins on Still no real answers…
- Debra Tsugawa on Liam is going to receive Hunters cells today, please pray… updates from mommy
- Nana on Today you can tell Liam is not feeling a 100% :(
- Ann on Today you can tell Liam is not feeling a 100% :(
- Ann on Picc Line placement today : (
- 1st BMT – DAY +0 Transplant Day – Photos
- 1st BMT – Journal Updates to Day +50
- 1st BMT – Liam’s Chimerism Engraftment Results
- Bone Marrow Registry Info
- Fundraising for Liam
- HLH Stories
- Kristy’s Twitter Updates
- What is HLH or FHLH?
- Alexandra H. Filipovich, MD – special interest in histiocytic disorders, especially Hemophagocytic Lymphohistiocytosis (HLH)
- Applying for Social Security Benefits for histiocytosis.
- Diagnostic criteria for hemophagocytic lymphohistocytosis (HLH)
- Diaper Rash Care & Home Remedies
- What are the symptoms of adrenal insufficiency?
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Tag Archives: Hemophagocytic lymphohistiocytosis (HLH)
Our little warrior sound asleep on Nana’s tummy Liam has GVHD of the gut They will be starting him on steroids today. Please pray the steroids work. Thank you Graft-versus-host disease (GVHD) is a complication that can occur after a … Continue reading
UPDATE 1:18 pm ~ Liam is in surgery, please continue to PRAY. UPDATE 3:11 pm ~ Liam is out of surgery, in recovery. They said everything went well. Please continue to pray…
The doctors have decided they want Liams Hickman out. They say it is to risky to keep it in. So tomorrow morning he will get it out and a PIC line put in. Please say a prayer that it … Continue reading
Liam is feeling better each day. Yesterday he had to receive a blood transfusion. He will be on antibiotics for 14 days. The doctors are pleased with his recovery. He did get sick a couple of times yesterday, but … Continue reading
Update: Liam has a blood infection and is getting antibiotics. Still fighting fevers and throwing up along with diarrhea. Thank you for all the prayers and please don’t stop he’s not out of the woods yet
Our little warrior is just starting to wake up this morning. He wasn’t wanting to go to sleep last night. He was wanting to tell mommy big stories. He is doing good. Still trying to get him to start eating … Continue reading
Day +28 – DNA Chimerism Analysis – April 2013 Post Transplant Peripheral Blood CD3+ t-cells ~ 16% donor Hunter, 42% donor Noa, 42% Liam CD33+ myeloid cells ~ 0% donor Hunter, 100% donor Noa, 0% Liam CD56+ NK cells ~ … Continue reading
Liam just threw up We had to go up on pain meds but he’s still smiling He’s such a warrior! Day +6 and still doing well.
Liam is day -5 and received 2 different chemos today. He is crabby and still having loose stools. He is charming all the nurses and still smiling at times he is amazing and such a fighter. Tomorrow he will receive … Continue reading
First day out of the Hospital The steroids have been really hard on Liam. He hasn’t been sleeping well at night.