Liam’s Mailing Address

Posted on March 14, 2013 by Nana
Kristy & Liam Smith
Room#14
5130 40th Ave NE
Seattle WA 98105
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2nd BMT – DAY +7

Posted on March 13, 2013 by Nana

MOMMY: Liam is doing well today! 🙂 I wish I would stop holding my breath. Time will help with that. He did receive platelets, but that is to be expected.
We will be moving to the Ronald House today!! I feel so blessed that an apartment opened up sooner.
I am so humbled by the support from all of you. I can’t thank you enough, for walking this journey with us.

 

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2nd BMT – DAY +6

Posted on March 12, 2013 by Nana

Liam just threw up 🙁 We had to go up on pain meds but he’s still smiling 🙂 He’s such a warrior! Day +6 and still doing well.

Liam’s Rash from a couple days ago

Rash from a couple days ago

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2nd BMT – DAY +5

Posted on March 11, 2013 by Nana

MOMMY: Today has been pretty good, but Liam’s bottom is so raw and he is in a lot of pain. Liam’s ANC is 0 and this now means, possible infections. Im hoping he does not but the possibility is there.

TUB TIME

I want to thank Carolyn Gill for putting the amazing benefit concert together 🙂 I can’t wait to see the video.

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2nd BMT – DAY +4 – Liam Praying

Posted on March 10, 2013 by Nana

Liam just had a little bloody nose 🙁 If it happens again they are going to check his platelets again. Talk about freak this momma out!

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2nd BMT – DAY +4

Posted on March 10, 2013 by Nana

The look Liam gave the nurse when he was told not to pull on his lines! Lol

 

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2nd BMT – DAY +3

Posted on March 9, 2013 by Nana

Liam has had a pretty good day. Im not sure what tomorrow will bring, but I’m hoping for the best 🙂

Liam loves his Elmo Slippers! Thank you, JoJo 🙂

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2nd BMT – DAY +2 – New Hickman Line placed today

Posted on March 8, 2013 by Nana

Liam’s in surgery. Just waiting to see my little HLH warriors smile 🙂

        Before Liams Hickman replacement (above)             Liam is out of surgery 🙂 (above)

New Hickman Line

MOMMY: Liam has not had a fever this evening. 🙂 He is no longer eating so, he has been put on TPN as well as lipids. He is receiving pain meds more,frequently so tomorrow, he will go on a continuous drop. This is the time the doctors expect Liam to start getting sicker 🙁 ANC is very low so risk of infection is very high. He is such a little fighter and such a brave warrior. I’m so proud of my boys.

NANA: Was sitting here thinking about Day +14, it falls on the first day of Spring. They say that engraftment can start around Day +14. Pray for those cells to Grow, Grow, Grow 🙂 ~ Nana

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2nd BMT – DAY +1

Posted on March 7, 2013 by Nana

Liam’s been resting a lot today. But still woke up with a smile. He spiked a fever this morning 103.6. So they did blood cultures and a chest x-ray. The fever is down now. The xray looked good, but his Hickman line has some changes in placement. They will let us know this afternoon what needs to be done. ~ Nana

I’m behind on updates, so trying to get everything posted. Thanks for following Liams Journey.

 

Just got word that they are wanting to put in a new Hickman line, possibly tomorrow. This is not what I wanted to hear. Please pray….. Nana

MOMMY: Liam will have surgery tomorrow for Hickman replacement. He has continued having fevers and still has a rash.

NANA: Noa’s appointment went well today. They removed the bandages and everything looks great. Thanks for all the prayers for our brave warriors.

  

  

Hunter checking out big brother Noa’s surgery site. They are both such brave brothers.

MOMMY: I wanted to say, to those that are new to Liams journey, Hunter was Liams first donor. Noa was Liams donor for his 2nd transplant. I am so proud of my boys! 🙂

 

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2nd BMT – DAY +0 Happy Transplant Day

Posted on March 6, 2013 by Nana

It is a great morning Liam slept all night. He is up and playing with his new firetruck he got yesterday from child life 🙂 , he really likes it a lot. He is really happy this morning. Today is the Big Day, thanks for all the love, prayers and emotional support . ♥ — at Seattle Children’s Hospital.

 

Transplant Poster made by one of the nurses. Thank you, nurse Megan!

 

 

 

 

 

 

 

Dr. Andrews and Noa, before his procedure. Such a hero!

 

 

 

Liam has not received his cells yet. They got such a good amount of marrow from Noa, that it is taking longer to process it.

Noa is doing well, but is tired.
I want to thank everyone that changed their FB profile picture to support Liam. It means the world to me. 🙂

  

Liam being hooked up to his platelet infusion (above)

<<< Noa’s marrow 🙂 Noa’s cells are done going in! 🙂 Way to be a warriors, I am so proud of each of my boys. I will never be in this exact moment again and I couldn’t of been more blessed to share it with my boys, family, and the incredible staff at Seattle Children’s Hospital. The doctors and nurses who have dedicated their time and heart to Liam, are family to us, and I will be forever grateful, for them.

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