Category Archives: Hemophagocytic lymphohistiocytosis (HLH)

2nd BMT – DAY +82

Liam loves to look at all the photos and videos on the iPad of the family. Every time he see’s this photo, this is what he says, “NO NO’s (Noa) BLOOD SAVE BOO” It is so hard to hold back … Continue reading

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Liam learning to ride his bicycle (Video Link)

Liam learning to ride his bicycle. He had a smile from ear to ear. He said, “GO FAST” PRICELESS MOMENTS… Liam – May 26, 2013 12:16pm If the video doesn’t work click on this link to view video. You will be … Continue reading

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Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases

Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases Source: http://txch.org/cancer-center/histiocytosis-program/research/spit-for-a-cure-new-study-to-define-the-role-of-inheritance-in-histiocytic-diseases/ The blood stem cell matures through different pathways to produce many different types of histiocytes, now called dendritic cells (DC) that are central to … Continue reading

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2nd BMT – DAY +79 Mommy’s Superman

My Superman! Love him more then words can express… Liam was released from the hospital on Wednesday (5/22). He was waiting patiently by the door to go. It was a bitter sweet moment. Excited that he is doing well enough … Continue reading

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Mommy’s beautiful baby boy

Posted in Bone Marrow Transplant, Hemophagocytic lymphohistiocytosis (HLH), Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, HLH, Liam's 2nd BMT updates, Photos | Tagged , , , , , , , , | Comments Off

2nd BMT – DAY +70

Future Doctor ~`Blood cultures are still negative. Tonight is the last doses of meropenum. They will wait one day, than take blood cultures. Praying that the test will continue to be negative. He will be on the bactrim longer. He … Continue reading

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2nd BMT – DAY +67

Happy Mother”s Day from Liam (4 photos)   Liam is having a great day. He slept well last night. Fell asleep around 10:30pm, and didn’t wake up until 9am. He woke up with a beautiful smile and happy. The lab cultures … Continue reading

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2nd BMT – DAY +66

Liam is having a good day. He has been up playing since he woke up from his nap. The last few days he has been eating small amounts of food at lunch and dinner. Still not interested in breakfast. But … Continue reading

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My super hero! Thank you for the shirt Sheri Kerr

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2nd BMT – DAY +64

Liam is out of surgery. They didn’t see any GVHD in his tummy but they have to wait for the biopsies to come back. They say if there is some GVHD it should be mild. Thank you to everyone following … Continue reading

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