Monthly Archives: April 2012

Diaper Rash Care & Home Remedies

Chemo Treatments and all of the medicine that patients get Pre Bone Marrow Transplant are so harsh. The diaper rash can be almost unbearable for a child. I hope this information may be helpful to other patients going thru HLH … Continue reading

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Liam’s 11 months Post Transplant

Liam is 11 months post transplant 2day! It was so hard 2 imagine him this far but here we are I’m so blessed that it hasn’t been his time

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Please keep Jaelynn and her mom in your prayers…

Please keep Jaelynn and her mom in your prayers. Her mom posted today that she is in critical condition. She was diagnosed with HLH on August 16, 2011. She recieved her Bone Marrow Transplant on Dec. 7, 2011. Pray for a … Continue reading

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DAY +334/31 – Liam is 19 months old today

Kristina updated her FB status: Liam is 19 months old today and still kicking HLH in the butt! I love you baby boy your such an inspiration to me

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Happy Easter

Kristina updated her FB status: “Today was perfect! The boys enjoyed the sunshine, hunted eggs, and ate home made pizza and coffee cake! Not a traditional Easter dinner but it didn’t matter. My Mom and Dad came up and ate. … Continue reading

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DAY +339/36 – Clinic appointment today

Liam has a dr at today pls keep us in your prayers that all labs come back normal and he doesn’t get whooping cough. I’m so scared he might On our way in I’ve been fighting panic attacks. I just … Continue reading

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Please say a prayer for Jaelynn and her family..

Jaelynn’s Journey In August 2011, Jaelynn was diagnosed with Hemophagocytic Lymphohistiocytosis (HLH), a very rare disorder of the immune system primarily affecting young infants and children. This disorder causes the immune sys­tem to mal­func­tion and attack the body. source: http://www.savejaelynn.com/

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I have to say this and I know I’m going to upset some people

Kristina  updated her FB status: “I have to say this and I know I’m going to upset some people but it has been weighing on my heart for some time. I want to say I respect parents decision to not … Continue reading

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38 days… 1 year post BMT :)

38 more days until Liam is one year post bone marrow transplant!

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