Tag Archives: Rare Disease Day

2nd BMT – DAY -1

Liam has been very inconsolable for 3 hours I hope at some point we will be able to get him comfortable. It is the worst feeling to see your child like this, and know there is nothing, you can do. … Continue reading

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Liam rocking to Elmo…

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DAY -4

Liam received 2 chemos (treosulfan, fludarabine) already today. ATG is going in and Im nervous, but i have faith that Liam is strong enough to handle it. My little warrior, is such a fighter!!! Liam’s HLH Journey Liam is having … Continue reading

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Please say a prayer for Brent and his Family…

Kristina updated her FB status: Please say a prayer for a little boy named Brent he has fought so hard against Mito & HLH his mother posted there is nothing more they can do they are taking him out of … Continue reading

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NYC 2012 Histio Awareness Campaign – Video By: Rochelle

Make a video – it’s fun, easy and free! www.onetruemedia.com NYC 2012 Histio Awareness Campaign liam’s lighthouse foundation by rochelle ::

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Help Raise Histio Awareness – FEBRUARY 24-25, 2012

 Please help raise Histio Awareness RARE DISEASE DAY PRESS RELEASE (PDF File) NEXT YEAR’S CAMPAIGN WILL BE HELD IN NYC FROM FEBRUARY 24-25, 2012.  PLEASE CLICK ON THE LINK BELOW FOR DETAILS! https://www.facebook.com/#!/events/252239901479695/  http://www.liamslighthousefoundation.org/awareness_campaign.html Liam’s Lighthouse Foundation 3rd Annual Histiocytosis Awareness … Continue reading

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