I have to say this and I know I’m going to upset some people

Kristina  updated her FB status:

“I have to say this and I know I’m going to upset some people but it has been weighing on my heart for some time. I want to say I respect parents decision to not vaccinate their children but I want to say by not doing so is bringing back all these diseases that would kill Liam if he contracted them. I cannot vaccinate Liam until at least 1 year post transplant. So he is not protected against them. It’s hard for me because I have watched Liam fight harder for his life than I ever knew possible and knowing that the spread of these illnesses could be potentially be eliminated if people vaccinated there child is hard for me to swallow. I think of all the baby, toddlers, children, and adults who fight so hard for there life’s and a illness that a healthy person could survive they don’t stand a chance against. This journey has opened my eyes and heart and there is so much that everyone could do to protect immune suppressed patients. As simple as washing your hands, staying home when you are sick, not sending your kids to school when they are sick. Thank about what could happen to those that are fighting the hardest battle of there life and what we take for granted can kill them. I hope I didn’t offend anyone but I had to get that off my chest. I hope as much as I respect others opinions you will do the same. I’m only asking you to think about what I wrote.”.

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38 days… 1 year post BMT :)

  • 38 more days until Liam is one year post bone marrow transplant!
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Kristy’s Twitter Updates – March 12 – 26, 2012

10:03 AM – 12 Mar 2012 – Liam is 10 months post bone marrow transplant today!

10:48 PM – 12 Mar 2012 – Liam looked at me pointed his finger and said brat! As plain as day and kept saying it 🙂

1:56 PM – 14 Mar 2012 – Liam’s Indocrinology apt went good! They said that the dose he is taken due to weight & height he has already weened down 50% so

 2:39 PM – 14 Mar 2012 – Liams Endocrine apt due 2 his weight &height he’s weened himself down enough that they r checking a cortisol level fri if good no more hydro

7:10 AM – 16 Mar 2012 – We are off to get Liam’s cortisol level drawn. Please pray for good levels so he can stop taking hydrocortisone.

6:41 PM – 18 Mar 2012 – Ryder just said to me “your the best mommy ever mommy” melted my heart 🙂

9:37 AM – 19 Mar 2012 – Liam did not sleep at all last night 🙁 I hope he is ok. Cortisol level came back good! 13 so now we ween 🙂 liver a little elevated 🙁

11:31 PM – 21 Mar 2012 – I was left speechless after reading a BMT parents post a dr told him that his child had HLH or cancer & that they should pray its not HLH

11:47 PM – 25 Mar 2012 – I hate HLH its that simple Its not fare or right 2 see your child fight so hard 2 beat HLH Its a heartbreaking disease that needs awareness

11:32 AM – 26 Mar 2012 – Liam just said I love you to Ryder. It was so cute 🙂

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DAY +315/50 – I am so thankful we are in isolation!

Kristina Bunker-Smith updated her status: March 22, 2012

“I am so thankful we are in isolation! It seems like everyone on Facebook is sick or is getting over being sick. I hope we don’t get it. I hope everyone feels better.”

 

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8 years ago today I was hit by a drunk driver head on

Kristina updated her status:

“8 years ago today I was hit by a drunk driver head on. I was taken to the hospital were they stitched me back up dug the glass out of my face and mouth and sent me home because there wasn’t enough beds for them to keep me. 10 days later I collapsed on my floor at home alone I was bleeding to death internally. My grandma found me passed out on the floor. I was rushed to the hospital were they removed my spleen. I was almost taken from my two older boys that day. So before you only think of yourself and get in a car after you have been drinking think about how it might effect someone else’s life. Don’t drink and drive.”

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Hannah’s donor: What it means to be a donor

Here is the part of the piece I taped while the tv station was here today filming the interview. It’s the part with Patrick & Hannah. The sound wasn’t that good because I was trying to stay out of the view of the camera, so you will have to turn the volume up. He is nothing short of wonderful! ♥ http://youtu.be/zdiUGPmQShI

This amazing young man is named Patrick. He was our daughter’s donor and truly an angel in disguise. Here he shares his experience with all of us and explain…
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DAY +303/62 – Happy 18 months old to Liam today

Mommy’s twitter update:

Liam is 18 months old today! He is such an inspiration to me and has taught us all miracles are possible. Mommy loves you so much 🙂

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Brent lost his battle with HLH…

Please keep his family in your prayers. He fought like a true warrior. Our heart are heavy with sorrow.  Rest in peace little buddy…

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Please say a prayer for Brent and his Family…

Kristina updated her FB status:

Please say a prayer for a little boy named Brent he has fought so hard against Mito & HLH his mother posted there is nothing more they can do 🙁 they are taking him out of the PICU and moving him to his floor to be surrounded by family and love. They need a miracle.

To read Brent story click on the link: http://beautifulchaotic4.blogspot.com/2012/03/catch-up-on-our-journey-part-1-brent.html

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DAY +301/64 Clinic Appointment today

Update from Mommy:
Liam’s CBC labs came back in the normal range! Thank you for the prayers. We discussed his hydro ween and they realized that he needs his adrenal function tested so we go see endocrine on march 14 then they should schedule the test. They were supposed to get a magnesium level but the blood clotted and they would of had to poke him again so we will leave Liam on the same dose of magnesium for now…. They will check it at his next appointment. We also discussed what isolation will mean at a year post BMT for Liam and they said he needs to be off his Tacrolimus for at least 6 months before we can take him around people. So that would be in August 🙁 but that’s ok because it’s worth it. Liam was 23lbs. 2oz.. The doctor appointments are getting a lot more changeling because Liam does not understand why I won’t let him down so he can play. So he pretty much screamed the whole time. There is no reasoning with a 17 month old. I feel so bad 🙁
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