Kristy’s Twitter Updates – March 12 – 26, 2012

10:03 AM – 12 Mar 2012 - Liam is 10 months post bone marrow transplant today!

10:48 PM – 12 Mar 2012 - Liam looked at me pointed his finger and said brat! As plain as day and kept saying it :)

1:56 PM – 14 Mar 2012 - Liam’s Indocrinology apt went good! They said that the dose he is taken due to weight & height he has already weened down 50% so

 2:39 PM – 14 Mar 2012 - Liams Endocrine apt due 2 his weight &height he’s weened himself down enough that they r checking a cortisol level fri if good no more hydro

7:10 AM – 16 Mar 2012 - We are off to get Liam’s cortisol level drawn. Please pray for good levels so he can stop taking hydrocortisone.

6:41 PM – 18 Mar 2012 - Ryder just said to me “your the best mommy ever mommy” melted my heart :)

9:37 AM – 19 Mar 2012 - Liam did not sleep at all last night :( I hope he is ok. Cortisol level came back good! 13 so now we ween :) liver a little elevated :(

11:31 PM – 21 Mar 2012 - I was left speechless after reading a BMT parents post a dr told him that his child had HLH or cancer & that they should pray its not HLH

11:47 PM – 25 Mar 2012 - I hate HLH its that simple Its not fare or right 2 see your child fight so hard 2 beat HLH Its a heartbreaking disease that needs awareness

11:32 AM – 26 Mar 2012 - Liam just said I love you to Ryder. It was so cute :)

This entry was posted in Doctors Appointments, Liam's BMT updates and tagged , , , . Bookmark the permalink.

Comments are closed.