Author Archives: Nana

2nd BMT – DAY +30

Posted on April 5, 2013 by Nana

MOMMY: Liam loves it when the music lady comes 🙂 Results are not back yet. Maybe later today. Hoping, praying, and leaning on faith 🙂

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2nd BMT – DAY +29

Posted on April 4, 2013 by Nana

MOMMY: Liam got blood today 🙁 I was so hoping he wouldn’t need anymore. Today has been a hard one for me. The waiting and wondering is not easy. I hope only good results come from the bone marrow biopsy … Continue reading →

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What are the symptoms of adrenal insufficiency?

Posted on April 3, 2013 by Nana

by Liam’s HLH Journey (Notes) on Wednesday, April 3, 2013 at 1:50pm Liam has adrenal insufficiency, he also had this with his 1st Bone Marrow Transplant. He has be started on hydrocortisone. Here is some information about Adrenal Insufficiency. SOURCE: http://endocrine.niddk.nih.gov/pubs/addison/addison.aspx#treatmentThe symptoms of adrenal … Continue reading →

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2nd BMT – DAY +27

Posted on April 2, 2013 by Nana

MOMMY: Liam is still throwing up but they have been increasing his feeds. He is very active and loved being unhooked from his pole for two hours today!! He does have Adrenal deficiency, so he is being started on Hydrocortisone. … Continue reading →

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2nd BMT – DAY +26 ~ Mr. Cool!!

Posted on April 1, 2013 by Nana

Thank you, Lisa Yoo for the adorable Elmo sweatshirt, with Liams name on it. You are such an amazing person, always,thinking of you ♥

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2nd BMT – DAY +25 Happy Easter Everyone :)

Posted on March 31, 2013 by Nana

I hope everyone has a blessed day.   

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2nd BMT – DAY +24

Posted on March 30, 2013 by Nana

Today has been really good for Liam 🙂 I got a phone call this morning that left me in tears. I can’t believe anyone would call and cuss me out and threaten to take my children. Knowing I’m up here … Continue reading →

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If I could ask God, for one thing…

Posted on March 28, 2013 by Nana

MOMMY: I wouldn’t hesitate. I’d say “please heal all these children fighting for their lives”… As I left Liams room today, to grab something to eat. I passed by a little girls room, who’s mother I have become very close to. … Continue reading →

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2nd BMT – Day +22 ANC 690 :)

Posted on March 28, 2013 by Nana

NANA: Liam got the feeding tube placed last night 🙁 Now he has had a sick tummy, and vomited many times. Hoping it will slow down. He isn’t wanting to eat now. They gave him formula feeds yesterday, and his … Continue reading →

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2nd BMT – DAY +21 Liam’s ANC is 630!!!

Posted on March 27, 2013 by Nana

MOMMY: His platelets are 164 🙂 Liam weighs 39.6lbs. Last night was rough for him. He was up almost every hour and has had a very upset tummy today 🙁 Liam also had to get the NG tube placed and … Continue reading →

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