Liam's HLH Journey

This morning Kristy, Jared and Liam are at a consult in Portland. Liam has to have a Hickman Line put in. They have to put it in because the Picc Line cracked two weeks ago and had to be pulled out. They will be doing it on Friday. Liam has chemo & steriods the same day.

The Children’s Hospital at Legacy Emanuel

We went to Seattle on March 22, 2011 to the Children’s Hospital. We all had to go. They told us that Noa and Hunter are a 100% match to Liam. Which is a huge relief. Know we have to wait for there NK function tests results to come back. If those test come back good. Then we will wait for the genetic test results which will take about 4 weeks. If they are not able to donate then they will use umbilical cord blood. They have 140 possible matches. Liam’s typing is so rare that they have not found a match in the registry. That is why they are going with cord blood. So in life remember you can make a miracle happen by just being put in the registry. I know I am forever thankful to those that donate blood. Or go into the bone marrow registry. Without those people Liam would not be here. I plan to be put in the registry as soon as I can. I also plan to start donating blood. If I can help one person that is all that matters. Please keep us in your prayers.

Kristy & Jared are at the doctors with Liam. He has chemo today, and 3 days of steriods on the maintence plan. It is so hard to get him to take his new medicine Cyclosporine, he does not like it at all. I tasted it I don’t think you could use anything to mask that taste, aweful. Thank you for your continued Prayers for our Little Liam.