DAY +164 No clinic appointment this week

Kristy’s Twitter update for October 24, 2011
Tomorrow we have no dr’s apt and it feels really weird.
Liam is walking all over now and he can climb the ladder 2 his brothers bunk bed and gets up on the top bed.

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DAY +160 Clinic appointment today

Mysticlimber13

Liams apt went very good 2day he’s 20.03lbs. His quick labs all came back in the normal range 🙂 He is now down 2 once every 2 weeks for apts.

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Help Liam & Raise Awareness for HLH – Liam’s Costume Run – October 30, 2011 @ 10am

Message from Kristy: Even if you can’t do the run please spread the word. Awareness is what saves these children’s life’s. For more Info go to : http://liamsjourney.com/

Click this link to download entry form.  http://liamsjourney.com/LiamsRunRegistrationForm.pdf

“Liam’s Journey” Costume Run

IN SUPPORT OF LIAM RIVER SMITH

Sunday, October 30, 2011 10:00 a.m.

Horseshoe Lake Park

5K Run/Walk, 10K Run, Free Kids Fun Run

All proceeds go to support Liam River Smith in his battle against Hemophagocytic Lymphohistiocytosis (HLH).  For more information on this event and Liam and his battle with HLH go to liamsjourney.com.

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Entry fee for 5K or 10K is $30 and includes t-shirt (if registered by October 7th) and free Burgerville cheeseburger meal.

Kids Fun Run is free and includes a treat bag.

Make checks payable to:  Liam R. Smith Fund

Mail completed form and payment to:  PO Box 332, Woodland, WA 98674

 

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Day + 158 Liam’s Walking

Kristy’s Twitter Update – October 16th 2011 – Noa and Hunter went hunting with Jared. Hope they get one. Liam is walking all over now. It is so cute.

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Low Fever…

Kristy’s Twitter Update – October 12, 2011, 11:10 PM

Liam’s temp is a little up so I will monitor it all night if it goes over 100.4 then we have to take him in. Hoping it’s just teething 🙁

Kristy’s Twitter Update – October 13, 2011, 11:00 AM

Liams temp is down. I’m hoping it stays that way. Im hoping it really was just teething. Thank you for the love and support 🙂

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DAY +153 Walking, Waving and Kisses

Kristy Twitter Updates – Wednesday, October 12, 2011

Liam is now starting 2 walk, wave & blow kisses. He is so amazing. His favorite toy is the Woody doll that talks & his best friend is Ryder

If all goes as planned Liam will get his Hickman out the end of December 🙂 he got IVIG yesterday he was just below the limit.

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Liam’s first ride on the four wheeler

Kristina Smith posted in Liam’s Journey – HLH Warrior. 3:23pm Oct 12

First ride on the four wheeler

 

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Liam’s diagnosis

One year ago today Liam was diagnosed with HLH. The doctors and nurses worked endlessly to save Liam’s life and they did. If Liam would of went undiagnosed he would not be here now. I will never forget those that saved my baby. With a diagnoses came devastating news he would start his long journey down a road full of a lot of unknown. I’ve never been so scared. His treatment would be chemo and steroids and many other medications along with antibiotics. I never wanted to see my baby go down that road but it has saved his life. It got him to transplant and through transplant. Sometimes in life there are things you don’t want to do but the journey makes us stronger. I am so humbled by the love and support we as a family have received. It’s made this journey easier knowing so many care. My baby boy is alive today because he was diagnosed. I hope to help bring awareness to this awful disease so that every child has a fighting chance against HLH.
Please sign up for the run on October 30, 2011. We are going to continue to do it each year in hopes that it will continue to grow and bring awareness.
Thank you,
Liam’s momma

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DAY +150 One year ago…

One year ago Liam was fighting for his life, with an inspiring will to survive.

Looking back at the last year it seems like such a blur. It has been a roller coaster of emotions, from extreme lows to extreme highs. This day takes you back to those moments in time that will forever be etched in my mind. I don’t know that I have still fully excepted it, at times praying this was just a NIGHTMARE… hoping to wake up from this, and that it would all be gone.

The visions in my mind of Liam laying their so helpless and feeling so helpless, with so many machines helping to keep him alive. He had to be put him on a ventilator, kidney dialyses, IV fluids, their was a wall of pumps. Those visions are a painful reminder of how far Liam has come.

We will be forever grateful to Legacy SC Hospital and Legacy Emauel Childrens Hospital. To all the doctors, nurses, all the medical staff at both hospitals, the ER Dr., Dr. G and the nurse that care for him until he was transported to PICU, the transport team, Dr. L, all the PICU medical staff, Dr. O and her team of doctors. We would also like to give a big thanks to the nurse that suggested that it looked like a case that she had care for with HLH (also known as Hemophagocytic lymphohistiocytosis). I wish that someday we can meet her. God blessed Liam with a medical staff that never gave up.

Thank you to all our family, friends, and our community for all the love, support, words of encouragement and endless prayers for Liam and our Family. Thank you so much for being their to keep us going.

We all feel so blessed that Liam has made it to this day, never taking it for granted. Thank you God for our many blessings.

It is so amazing that Liam is now on DAY +150. It is still a very stressful, and we are taking ONE DAY AT A TIME. Liam is doing great, he loves being all together with his brothers. Liam will be in isolation until May 2012. We have lived that way since Liam got sick. It has been a sacrifice that has been so worth it. I don’t think you can be safe enough, but at least try to do the best you can. It is really hard for me personally, you want to keep him in a protective bubble. You feel that with a child that can not speak for himself or even understand the seriousness of all of this, we have to do everything in our power to get him thru this and keep him safe. Our lifes come last and Liam comes first, he has been thru to much to take any chances.

Please continue to keep Liam & all of us in your prayers.

We Love you so much Little Warrior,
Love , Nana & Papa

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DAY +142 First Family Walk together

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