Author Archives: Nana

DAY +150 One year ago…

Posted on October 9, 2011 by Nana

One year ago Liam was fighting for his life, with an inspiring will to survive. Looking back at the last year it seems like such a blur. It has been a roller coaster of emotions, from extreme lows to extreme … Continue reading →

Posted in Liam's BMT updates, Photos | 1 Comment

DAY +142 First Family Walk together

Posted on October 2, 2011 by Nana
Posted in Photos | 1 Comment

DAY +139

Posted on September 29, 2011 by Nana

 Kristy’s Twitter Update – September 28, 2011 The apt went good. They just kept saying you’d never know Liam has had a BMT. They were very impressed. Now we just wait 4 the results. Liam learned how to sign all … Continue reading →

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DAY +138 Follow-up Appt. in Seattle/SCCA

Posted on September 27, 2011 by Nana

Kristy’s Twitter Update: September 27, 2011 We are on our way to Seattle please keep us in your prayers for only positive results. We are in Seattle. It’s nice weather. Wishing we could hit the Mt biking trails.

Posted in Doctors Appointments, Liam's BMT updates | 1 Comment

DAY +134 Liam took 3 Steps

Posted on September 23, 2011 by Nana

Kristy’s Twitter Update: September 23, 2011 Liam just toke three steps and instead of videoing it. I watched in amazement everything he does is a miracle to me. Liam was 19lbs 1oz he is still off NG feeds & will … Continue reading →

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DAY +131

Posted on September 21, 2011 by Nana

Kristy’s Twitter Updates: Liam was 18lbs 12.9oz 2day we will continue 2 c how he does without the NG 🙂 his tacro level is leveling out so we might get 2 go 2 1xweek

Posted in Doctors Appointments, Liam's BMT updates | Comments Off on DAY +131

DAY +130

Posted on September 19, 2011 by Nana

Kristy’s Twitter Update: Jared went back 2 work 2day. It is so hard doing this on my own and the thought of Jared getting sick is now a reality. Now we rely on hope

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DAY +124 Tacro level low

Posted on September 13, 2011 by Nana

Kristy’s Twitter update – September 13, 2011: Liam was 18lbs 10oz and they are going to leave his NG tube out until Friday to see how he does 🙂 Tacro level (3) is low again not sure why.  Liam and his … Continue reading →

Posted in Doctors Appointments, Liam's BMT updates, Photos | 1 Comment

Liam’s Birthday Photos

Posted on September 13, 2011 by Nana

                                                               

Posted in Photos | 2 Comments

Skin Biopsy Results

Posted on September 10, 2011 by Nana

Liams skin biopsy showed no sign of GVHD. I am so grateful that he does not have to fight against that right now.

Posted in Doctors Appointments, Liam's BMT updates | 2 Comments