UPDATE on Liam

Mommy’s update today on Liam

So I got the call today. We will head to Seattle on the 9th and I was informed that we will be staying at least a month. It is a very long process. It starts with blood draws on both Liam and Hunter and consults then Liam will be getting a pic line placed in his arm, then he will be admitted to the hospital to receive immune suppression. Then Hunter will donate at the SCCA while Liam is in the hospital and then Liam will receive the boost. This happens over a week and a half period. They are keeping us close to monitor Liam closely. I am terrified to be stepping back into HLH world. I really hoped we could say goodbye to it forever, but here we are and my hands are tied. Liam has no other option and as a mother those are the words you never want to hear. I’ve heard that so many times and its just not right. My love for my child does not allow me to give up but there are days that you don’t want to have to be so strong. I’ve always told myself as long as Liam is fighting so will I and he’s a fighter so I have hope that we will get through this. I pray this works and that we are not going to have to face another bone marrow transplant. Bone marrow transplants are just horrible, to watch your child in so much pain kills me inside as a mother. You truly at that point have to Let Go Let God cause that’s the only thing that will get you through. I could go on forever but I won’t, just please pray that this works and Liam does not get GVHD (Graft vs host disease). Thank you

This entry was posted in Doctors Appointments, Hemophagocytic lymphohistiocytosis (HLH), Histio Awareness - HLH, Hemophagocytic Lymphohistiocytosis, Liam's BMT updates and tagged , , , , . Bookmark the permalink.

Comments are closed.