Facebook post by Mommy:
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The family and friends of our little warrior, Liam Smith are uniting to raise support in helping him and his family as they fight to overcome Liam’s rare, but life threatening disease. We hope you will join us.
By Mail to:
Liam R. Smith
P.O. Box 913
Woodland, WA 98674 Activate your Email Subscription
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Thank you for following Liam's Journey
LiamsHLHJourney@gmail.com
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September 2010
This was taken 12 days before Liam was admitted to the Emergency Room.
November 2010
34 days after starting HLH-2004 Protocol, chemotherapy and steroid treatment.
May 2011
DAY +10
WBC <0.2 ANC (Absolute Neutrophil Count) 0 Platelets 13October 17, 2012
Today, I was admitted to the hospital to start the preparation to receive donor cells from my big brother Hunter. Please keep us both in your prayers.
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Seattle Children’s Hospital
www.seattlechildrens.org
4800 Sand Point Way NE
Seattle, WA 98105
United States
PHONE: 206.987.2000Dr. Jean Sanders and Liam
Dr. Jean Sanders built the pediatric transplant program at Fred Hutchinson Cancer Research Center and provided exemplary medical care and compassion for thousands of patients and their families. During her career she trained more than 90 specialists in her field and authored over 300 scientific publications. She also chaired multiple cooperative research group studies and served as advisor for many medical and scientific organizations including the Children's Oncology Group, the National Childhood Cancer Foundation, the American Academy of Pediatrics and National Institutes of Health.
Click on the photo to read about Dr. Jean Sanders. You will be redirected to http://questmagazine.wordpress.com/2012/06/11/pediatric-transplant-pioneer-jean-sanders-built-the-hutchinson-centers-and-the-nations-pediatric-transplant-program/
Seattle Cancer Care Alliance
www.seattlecca.org
Mailing Address:
825 Eastlake Avenue E.
Seattle, WA 98109Main Entrance:
1354 Aloha St.
Seattle, WA 98109Parking Garage:
1335 Aloha St. (under the clinic)
Seattle, WA 98109Need help finding SCCA?
Call (206) 288-SCCA (7222) or
(800) 804-8824 .Histiocytosis Association
Source: www.histio.org
We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.Childhood Cancer Awareness
- ROCKSTAR RONAN Ronan Thompson
- The Ronan Thompson Foundation
HLH Resources
- Alexandra H. Filipovich, MD – HLH Specialist contact info Dr. Filipovich has a special interest in histiocytic disorders, especially Hemophagocytic Lymphohistiocytosis (HLH).
- Be A Match, Save a Life! http://www.marrow.org/
- Hemophagocytic Syndromes and Infection by: David N. Fisman http://wwwnc.cdc.gov/eid/article/6/6/pdfs/00-0608.pdf
- Histiocytosis Association – Facebook Group http://www.facebook.com/groups/2251122469/
- HLH Family (Survivors & Angels) Facebook Group http://www.facebook.com/groups/HLHSurvivors/
- HLH-2004 Protocol PDF/Adobe Acrobat Treatment for HLH – Hemophagocytic Lymphohistiocytosis, is a rare disorder of the immune system
- Liam Smith's HLH Journey – Home Page www.liamsjourney.com
- Liam's Lighthouse Foundation – Liam Schulze Story http://www.liamslighthousefoundation.org/
- The Core of Diagnosis-Cincinnati Children's Hospital Lab and testing
- What is familial hemophagocytic lymphohistiocytosis? http://ghr.nlm.nih.gov/condition/familial-hemophagocytic-lymphohistiocytosis
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Recent Posts
- The Birthday Boy…
- September is Histio Awareness
- DAY +231 ~ LIAM’S CHIMERISM TEST RESULTS 2nd BMT
- DAY +218 – Three years ago today…
- DAY +195 Clinic Appointment
- The Birthday Boy…
- LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156
- 2nd BMT – DAY +153 update – 5 months post Transplant
- 2nd BMT – DAY +132 ~ Liam is doing good.
- 2nd BMT – DAY +110 – Coming Home :)
- 2nd BMT – DAY +84
- 2nd BMT – DAY +82
- Liam learning to ride his bicycle (Video Link)
- Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases
- Liam is my HERO…
- 2nd BMT – DAY +79 Mommy’s Superman
- Mommy’s beautiful baby boy
- 2nd BMT – DAY +70
- 2nd BMT – DAY +67
- 2nd BMT – DAY +66
Recent Comments
- Nana on My Hero… FB post by Mommy
- Ann on From a friends page..
- Auntie Deb on DAY+ 606
- Diane Balch on DAY +603
- Ann on DAY +600 UPDATE
- Nada Collins on Still no real answers…
- Debra Tsugawa on Liam is going to receive Hunters cells today, please pray… updates from mommy
- Nana on Today you can tell Liam is not feeling a 100% :(
- Ann on Today you can tell Liam is not feeling a 100% :(
- Ann on Picc Line placement today : (
Pages
- 08/14/2011 New Anxiety… Going Home…
- 09/06/2011 If God could take this all away… by Kristy
- 09/25/2011 I’am truly blessed… by Kristy
- 10/10/2011 Liam’s diagnosis, One year later… by Kristy
- 1st BMT – DAY +0 Transplant Day – Photos
- 1st BMT – Journal Updates to Day +50
- 1st BMT – Liam’s Chimerism Engraftment Results
- Bone Marrow Registry Info
- HLH Stories
- Links
- What is HLH or FHLH?
- Alexandra H. Filipovich, MD – special interest in histiocytic disorders, especially Hemophagocytic Lymphohistiocytosis (HLH)
- Applying for Social Security Benefits for histiocytosis.
- Diagnostic criteria for hemophagocytic lymphohistocytosis (HLH)
- Diaper Rash Care & Home Remedies
- What are the symptoms of adrenal insufficiency?
Archives
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- February 2013 (13)
- January 2013 (20)
- December 2012 (7)
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- July 2012 (11)
- June 2012 (4)
- May 2012 (7)
- April 2012 (19)
- March 2012 (14)
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- January 2012 (26)
- December 2011 (9)
- November 2011 (13)
- October 2011 (16)
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Facebook comments:
Douglas Mcnally, Kirsten Keller, David-marissa Coffey and 17 others like this.
Kandie Schmitz I sent out for a prayer request.
19 hours ago · Like
Vanessa Duran Prayers ♥
19 hours ago · Like · 1
Kandie Schmitz praying for you all.
19 hours ago · Like · 1
Ryan Mystique Hope this time it gets better
19 hours ago via mobile · Like · 1
Tiffany Ann Always praying!!! ♥
19 hours ago · Like · 1
Tina Bragg Wolf Awwh Krissy I am so sorry! I refuse to accept this new’s God is way BIGGER than this. Praying like crazy for you girl.
19 hours ago · Like · 2
Lori Ehrmantraut Negron UGH!!! UGH!!! UGH!!! Sending positive vibes that the DLI works quickly! Praying that this is all he will need.
19 hours ago · Like · 2
Robin Cazier Love you guys so much!!!! Always in our prayers!! ♥
19 hours ago via mobile · Like · 1
Rhonda James Praying for you and That Liam doesnt need another transplant!!!
19 hours ago · Like · 1
Tiffany Baltz Praying so hard for you guys.
19 hours ago · Like · 1
Brianne Ryan prayers always
19 hours ago · Like · 1
Lisa Yoo Praying for the best ♥
19 hours ago via mobile · Like · 1
Joyce H Sulfridge prayers for you
19 hours ago · Like · 1
Ann ‘Peterson’ Nord I’m so sorry to hear this. Praying for Liam and your entire family.
19 hours ago via mobile · Like · 1
Scott LaPierre Kristina, our church has been praying for Liam.
19 hours ago · Like · 1
Kristina Bunker-Smith Thank you all so much :*(
18 hours ago via mobile · Like
Diana Morrison your family is always in our prayers!!!
18 hours ago · Like · 1
Anna Fiordilino Hugs to you and all your boys! I owe you a message… One coming later this week. Be warned 😉
18 hours ago via mobile · Like · 1
Jeffrey Kerr Are prayers are with u!!!!! Poor lil guy should not have to go through this!! & you are an amazing women to half to deal with ur situation so sorry Krissy big HUGS your way and our thoughts and prayers are always with u!!!!!
18 hours ago via mobile · Like · 1
Pat Bender-Levinson Sending hugs, prayers and positive thoughts. Xoxo
17 hours ago via mobile · Like · 1
Cecelia Ann North Blodgette prayers will certainly continue… stay strong… all our love for you all.
17 hours ago · Like · 1
Casey Nadeau So sorry to hear of this. I hope everything will get better for you soon. My family will pray for you and your boys. Xoxoxoxo
17 hours ago via mobile · Like · 1
Toni Woods Prayers continue Krissy . I wish Could take this all away from you for even a week. It is a trial only God is big enough to take care of. Lord lay a healing hand on Liam and give the family strength to deal with even the daily challenges of life.
17 hours ago via mobile · Like · 1
Tina Riehle Praying for that gorgeous little guy!
17 hours ago · Like · 1
Joy Holcomb-Wilcox You always have my prayers and my thoughts are with u!
17 hours ago via mobile · Like · 1
Crystal Mars You got it!
16 hours ago · Like · 1
Diane Poulsen Balch Always in our prayers and positive thought for all of you! ooxx
15 hours ago · Like · 1
Niccole Justiz You guys are in my prayers.
15 hours ago · Like · 1
Sara Youman In my prayers
13 hours ago · Like · 1
Ryan Musgrove On their way!
13 hours ago · Like · 1
Karen Beavers Im so sorry Kristy. Praying for you all. I hope this works for Liam. Sending love and prayers xxxxx
11 hours ago · Like · 1
April Waltz praying for you all. my heart goes out to you
11 hours ago · Like · 1
Sandy Swingler Everyday in my prayers, God bless you and your boys ♥♥♥
8 hours ago · Like · 1
Holly Davis Ohh honey, I am so sorry!! I will continue to pray for Liam as always ♥ sending ((hugs)) too!
4 hours ago via mobile · Like · 1
Lynae Killian Lair So sorry to hear this! Many many many prayers for Liam!
4 hours ago · Like · 1
Lana Leake I will be praying for Liam. God will take care of him.
41 minutes ago · Like
Douglas Mcnally hugs to yyou all…
36 minutes ago · Like
Leslie Jones Blair Aww this is not what I wanted to hear… 🙁
20 minutes ago via mobile · Like
Leslie Jones Blair I am gonna keep guys in my prayers
19 minutes ago via mobile · Like
Praying for Liam for strength and healing. What a fighter he is!! Praying for your family as well.