Daily Archives: January 26, 2012

Isolation – Trying to keeping Liam Safe

Kristy posted a comment in HLH Survivors on Facebook: https://www.facebook.com/#!/groups/HLHSurvivors/ As Liam gets closer to 1 year post BMT there are a lot of emotions going through me. I’m wondering if you kept your child in isolation after 1 year … Continue reading

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DAY +243 Liam’s Chimerism Test Results

Subject: Kristina updated her status on Facebook. Date: 1/26/2012 3:44:26 P.M. Pacific Standard Time  Liam’s Chimerism Test Results: “We just wait and see, and hope for the best.” DAY+ 243 – 01/10/12        DNA Chimerism Analysis – Blood (CD3+) T Cell             … Continue reading

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I was RAISED!! I didn’t just grow up.

Subject: Kristina  updated her status on Facebook. Date: 1/9/2012 11:19:40 A.M. Pacific Standard Time “I was RAISED!! I didn’t just grow up. I was taught to speak when I enter a room, say please & thank you, to have respect … Continue reading

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Journeys of hope…

Subject: Kristina updated her status on Facebook. Date: 1/14/2012 9:45:33 A.M. Pacific Standard Time  ”HOPE We are all meant for these journeys of hope. Of tenderness of love. Of doing things we never thought we could do.This is where our … Continue reading

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I want HISTIO classed as a cancer!

Subject: Kristina updated her status on Facebook. Date: 1/14/2012 9:37:15 A.M. Pacific Standard Time  ”I want HISTIO classed as a cancer! I want it acknowledged that histio patients have the same awful treatments as those with cancer-chemo, steroids, surgery etc, … Continue reading

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We have come so far…

Subject: Kristina updated her status on Facebook. Date: 1/22/2012 5:42:49 P.M. Pacific Standard Time  ”We have come so far, others say not enough. However, “Be not afraid of growing slowly, but be afraid of standing still.””

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To Find Hope…

Subject: Kristina updated her status on Facebook. Date: 1/24/2012 1:04:38 A.M. Pacific Standard Time “When do you throw in the towel, admit that the lost cause is just that. It comes a point when it becomes too much, when we … Continue reading

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Mia your amazing!

Subject: Kristina updated her status on Facebook. Date: 1/25/2012 11:18:34 P.M. Pacific Standard Time Kristina updated her FB status: “I got this off a page of a mother who’s little girl is so brave. Mia your amazing! The Strength of … Continue reading

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“MARRIED OR NOT U Should Read This:

  Subject: Kristina updated her status on Facebook. Date: 1/21/2012 10:55:46 P.M. Pacific Standard Time  ”MARRIED OR NOT U Should Read This: I got home that night as my wife served dinner, I held her hand and said, I’ve got … Continue reading

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