Liam's HLH Journey | HLH – Hemophagocytic Lymphohistiocytosis, is a rare disorder of the immune system

Liam is ready to be discharge

Posted on October 22, 2010 by Nana

10/22/10 – They think he is ready to go home! I’m so scared… Please keep him in your prayers.

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Liam going home today

Posted on October 22, 2010 by Nana

So blessed to have such great doctors caring for Liam. Dr. Lindsay came by to say goodbye to Liam, Mommy and Daddy

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Update from Mommy

Posted on October 19, 2010 by Nana

10/19/10 – via Kristina Smith – Liam’s treatment went good yesterday. He pulled his feeding tube out last night so he had to get a new one. He is so strong and alert.

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Liam is being moved out of PICU

Posted on October 18, 2010 by Nana

10/18/10 – via Kristina Smith They are moving him out of ICU. He is so amazing.

He is no longer recieving oxygen thru his nose they took it out. Thank you God for watching over our little Liam.

Today was a big day for Liam. He was moved out of ICU. It was a great, but scary day. Steps moving forward. I got to hold the little man for a couple hours, it felt sooooo good. He smiled so many times today, made my heart so happy. He little smile such happiness. He had his 3rd dose of chemo today. He tolerated it well, which was a great relief. Thanks to all for prayers and support…

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Our brave little man…

Posted on October 18, 2010 by Nana

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10/17/10 update

Posted on October 17, 2010 by Nana

10/17/10 – They are going to let mommy feed him today and see how he does. This is so exciting, little baby steps forward.

1:45pm – The feeding went well, he looks so much better today.
3:30pm – via Kristina Smith – They say he is doing so good that they may move him tomorrow out of ICU.

Mommy & Liam

Posted on October 16, 2010 by Nana

10/16/10 – Great news, they are taking the breathing tube out today.

1:15pm update: Mommy is holding our little Liam, what a great day!

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So grateful to God above for hearing our prayers…

Posted on October 15, 2010 by Nana

Liam River Smith

Friday, October 15, 2010 at 5:39pm

All the support and prayers from Family & Friends has been amazing, Thank you so much. God has worked miracles. The Doctors & Nurses have been so wonderful, we have been blessed with all of them.

I will try to keep everyone updated. Today was a good day, we had a conference with the team of Doctors. Everything is going in a positive way. They are slowing taking him off life support, as he is ready. This is a great thing. He was awake this afternoon, it is so good to see him awake and moving around. He couldn’t take his eyes off of his Mommy. It was just precious.

Thank you again for all the support & prayers, Carol

For information to learn more about HLH click on the links below:

http://www.childrenshospital.org/clinicalservices/Site1983/mainpageS1983P4sublevel13.html

http://www.cincinnatichildrens.org/svc/alpha/m/molecular-genetics/hlh-spec.htm

Want to support the Smith Family? An account has been opened for them under Liam River Smith & Jared and Kristy Smith, at Bank of America – Woodland, WA or any B of A branch. I also believe there is an account open at Fibre Federal in Woodland, WA. As this is going to be a long haul for them to endure.

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Liam was diagnosed with HLH

Posted on October 10, 2010 by Nana

We are still in shock, we have never heard of HLH. His treatment will be chemotheraphy and steroids. Please pray this treatment will work. He is hooked up to so many machines. It is so hard to see him like this. Fight little Man, we all love you so much.