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The family and friends of our little warrior, Liam Smith are uniting to raise support in helping him and his family as they fight to overcome Liam’s rare, but life threatening disease. We hope you will join us.
By Mail to:
Liam R. Smith
P.O. Box 913
Woodland, WA 98674 Activate your Email Subscription
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September 2010
This was taken 12 days before Liam was admitted to the Emergency Room.
November 2010
34 days after starting HLH-2004 Protocol, chemotherapy and steroid treatment.
May 2011
DAY +10
WBC <0.2 ANC (Absolute Neutrophil Count) 0 Platelets 13October 17, 2012
Today, I was admitted to the hospital to start the preparation to receive donor cells from my big brother Hunter. Please keep us both in your prayers.
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Seattle Children’s Hospital
www.seattlechildrens.org
4800 Sand Point Way NE
Seattle, WA 98105
United States
PHONE: 206.987.2000Dr. Jean Sanders and Liam
Dr. Jean Sanders built the pediatric transplant program at Fred Hutchinson Cancer Research Center and provided exemplary medical care and compassion for thousands of patients and their families. During her career she trained more than 90 specialists in her field and authored over 300 scientific publications. She also chaired multiple cooperative research group studies and served as advisor for many medical and scientific organizations including the Children's Oncology Group, the National Childhood Cancer Foundation, the American Academy of Pediatrics and National Institutes of Health.
Click on the photo to read about Dr. Jean Sanders. You will be redirected to http://questmagazine.wordpress.com/2012/06/11/pediatric-transplant-pioneer-jean-sanders-built-the-hutchinson-centers-and-the-nations-pediatric-transplant-program/
Seattle Cancer Care Alliance
www.seattlecca.org
Mailing Address:
825 Eastlake Avenue E.
Seattle, WA 98109Main Entrance:
1354 Aloha St.
Seattle, WA 98109Parking Garage:
1335 Aloha St. (under the clinic)
Seattle, WA 98109Need help finding SCCA?
Call (206) 288-SCCA (7222) or
(800) 804-8824 .Histiocytosis Association
Source: www.histio.org
We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.Childhood Cancer Awareness
- ROCKSTAR RONAN Ronan Thompson
- The Ronan Thompson Foundation
HLH Resources
- Alexandra H. Filipovich, MD – HLH Specialist contact info Dr. Filipovich has a special interest in histiocytic disorders, especially Hemophagocytic Lymphohistiocytosis (HLH).
- Be A Match, Save a Life! http://www.marrow.org/
- Hemophagocytic Syndromes and Infection by: David N. Fisman http://wwwnc.cdc.gov/eid/article/6/6/pdfs/00-0608.pdf
- Histiocytosis Association – Facebook Group http://www.facebook.com/groups/2251122469/
- HLH Family (Survivors & Angels) Facebook Group http://www.facebook.com/groups/HLHSurvivors/
- HLH-2004 Protocol PDF/Adobe Acrobat Treatment for HLH – Hemophagocytic Lymphohistiocytosis, is a rare disorder of the immune system
- Liam Smith's HLH Journey – Home Page www.liamsjourney.com
- Liam's Lighthouse Foundation – Liam Schulze Story http://www.liamslighthousefoundation.org/
- The Core of Diagnosis-Cincinnati Children's Hospital Lab and testing
- What is familial hemophagocytic lymphohistiocytosis? http://ghr.nlm.nih.gov/condition/familial-hemophagocytic-lymphohistiocytosis
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Recent Posts
- The Birthday Boy…
- September is Histio Awareness
- DAY +231 ~ LIAM’S CHIMERISM TEST RESULTS 2nd BMT
- DAY +218 – Three years ago today…
- DAY +195 Clinic Appointment
- The Birthday Boy…
- LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156
- 2nd BMT – DAY +153 update – 5 months post Transplant
- 2nd BMT – DAY +132 ~ Liam is doing good.
- 2nd BMT – DAY +110 – Coming Home :)
- 2nd BMT – DAY +84
- 2nd BMT – DAY +82
- Liam learning to ride his bicycle (Video Link)
- Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases
- Liam is my HERO…
- 2nd BMT – DAY +79 Mommy’s Superman
- Mommy’s beautiful baby boy
- 2nd BMT – DAY +70
- 2nd BMT – DAY +67
- 2nd BMT – DAY +66
Recent Comments
- Nana on My Hero… FB post by Mommy
- Ann on From a friends page..
- Auntie Deb on DAY+ 606
- Diane Balch on DAY +603
- Ann on DAY +600 UPDATE
- Nada Collins on Still no real answers…
- Debra Tsugawa on Liam is going to receive Hunters cells today, please pray… updates from mommy
- Nana on Today you can tell Liam is not feeling a 100% :(
- Ann on Today you can tell Liam is not feeling a 100% :(
- Ann on Picc Line placement today : (
Pages
- 08/14/2011 New Anxiety… Going Home…
- 09/06/2011 If God could take this all away… by Kristy
- 09/25/2011 I’am truly blessed… by Kristy
- 10/10/2011 Liam’s diagnosis, One year later… by Kristy
- 1st BMT – DAY +0 Transplant Day – Photos
- 1st BMT – Journal Updates to Day +50
- 1st BMT – Liam’s Chimerism Engraftment Results
- Bone Marrow Registry Info
- HLH Stories
- Links
- What is HLH or FHLH?
- Alexandra H. Filipovich, MD – special interest in histiocytic disorders, especially Hemophagocytic Lymphohistiocytosis (HLH)
- Applying for Social Security Benefits for histiocytosis.
- Diagnostic criteria for hemophagocytic lymphohistocytosis (HLH)
- Diaper Rash Care & Home Remedies
- What are the symptoms of adrenal insufficiency?
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Category Archives: Uncategorized
DAY +53 Happy 4th of July Everyone
Monday, July 04, 2011, 8:33am Kristy is resting at the RMH. So glad she is getting a restful nights sleep. I will post update when I get one from her. We all hope everyone has a great 4th of July. … Continue reading
DAY +52
Kristy’s Twitter Update – Sunday, July 3, 2011, 12:15 PM Liam is doing very good. He is a little climber and into everything. We have been so blessed and I am so thankful.
Prayers for HLH Victims – Keep this Convoy Goin’
Terri Ann Poulsen-Smith 12:35am Jun 28 ^^^^^^^^^^^^^^l |^^^^^^^^^^| |P | ♥ PRAYERS FOR HLH VICTIMS ♥~♥ ||”””;..\___. |……_______________| l______________l _||__|…, ]P “(@)’(@)”””””””*l'(@)l'(@)l “”””””””””””””(@)'(@)””””‘(@) Keep this Convoy Goin’
Day 46
Monday, June 27th, 2011 Liam is great, lots of fun times playing and doing all the normal baby stuff, he is wearing his mom and dad out! He keeps them busy and such a blessing to have him feeling so well. So … Continue reading
DAY +42
Thursday, June 23, 2011, 3:26 PM Things are better today. Ryder is back to normal, and very busy. Hunter is also feeling a bit better, but not 100% yet. Hoping that me & Noa don’t get sick now. Talked to … Continue reading
DAY +41
June 22, 2011, 9:04 AM Liam is doing good, his next appointment is on Friday. I haven’t gotten an update from Kristy this morning. Ryder hasn’t gotten sick since yesterday afternoon. But he is still not himself yet, very low … Continue reading
DAY +38 Liam has a virus – Clostridium difficile
Papa & the boys arrived Saturday evening to have a visit with Mom, Dad and Liam. Liam’s has a virus – Clostridium difficile http://en.wikipedia.org/wiki/Clostridium_difficile http://www.mayoclinic.com/health/c-difficile/DS00736 Info from the Mayo Clinic – Some people who have C. difficile never become sick, though … Continue reading
Gospel Benefit Concert for Liam River Smith
Gospel Benefit Concert for Liam River Smith Sunday June 19th 6pm-9pm Woodland High School Auditorium 757 Park Avenue Woodland, Washington Come support the family of Liam River Smith – our 9 month old HLH warrior – while at the … Continue reading
ANC Levels
Risk of Infection based on Absolute Neutrophil Count (ANC) ANC greater than 1500 No increased risk of infection ANC 1000-1500 Slight increase in risk of infection ANC 500-1000 Moderate increase in risk of infection ANC 100-500 High risk of infection … Continue reading
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