Kristy posted a comment in HLH Survivors on Facebook:
https://www.facebook.com/#!/groups/HLHSurvivors/
As Liam gets closer to 1 year post BMT there are a lot of emotions going through me. I’m wondering if you kept your child in isolation after 1 year post BMT? I’m a parent who has taken isolation very seriously maybe some would say to much but my only concern is keeping Liam safe.
The family and friends of our little warrior, Liam Smith are uniting to raise support in helping him and his family as they fight to overcome Liam’s rare, but life threatening disease. We hope you will join us.
By Mail to:
Liam R. Smith
P.O. Box 913
Woodland, WA 98674
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LiamsHLHJourney@gmail.com
This was taken 12 days before Liam was admitted to the Emergency Room.
34 days after starting HLH-2004 Protocol, chemotherapy and steroid treatment.
DAY +10
WBC <0.2
ANC (Absolute Neutrophil Count) 0
Platelets 13
Today, I was admitted to the hospital to start the preparation to receive donor cells from my big brother Hunter. Please keep us both in your prayers.
www.seattlechildrens.org
4800 Sand Point Way NE
Seattle, WA 98105
United States
PHONE: 206.987.2000
Dr. Jean Sanders built the pediatric transplant program at Fred Hutchinson Cancer Research Center and provided exemplary medical care and compassion for thousands of patients and their families. During her career she trained more than 90 specialists in her field and authored over 300 scientific publications. She also chaired multiple cooperative research group studies and served as advisor for many medical and scientific organizations including the Children's Oncology Group, the National Childhood Cancer Foundation, the American Academy of Pediatrics and National Institutes of Health.
Click on the photo to read about Dr. Jean Sanders. You will be redirected to http://questmagazine.wordpress.com/2012/06/11/pediatric-transplant-pioneer-jean-sanders-built-the-hutchinson-centers-and-the-nations-pediatric-transplant-program/
www.seattlecca.org
Mailing Address:
825 Eastlake Avenue E.
Seattle, WA 98109
Main Entrance:
1354 Aloha St.
Seattle, WA 98109
Parking Garage:
1335 Aloha St. (under the clinic)
Seattle, WA 98109
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Source: www.histio.org
We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.