DAY +83 – Hope and faith

Yesterday’s Clinic Updates: Ok not the best dr visit Liam’s potassium is a little low and his liver is a little elevated. So now we wait 4 fri. When they check again :(

Update from Kristy – Wednesday, August 3, 2011
I checked on Liam at 12:15am he pulled his NG tube out & his feeds r all over him and his bed I will have 2 put NG back n when he wakes up :(

I put NG tube back in :) I couldn’t fall asleep until 2am & Liam woke up at 3:45am so not much sleep 2 c his cute face makes it so worth it

Hope and faith is all we got. Don’t let anything blind you of the goodness that surrounds you. Let your heart be kind and your eyes open :)

Thursday, August 4, 2011 Liam has the Bone Marrow Biopsy testing, Please say a special prayer for Liam, Mommy & Daddy, Noa, Hunter and Ryder. This testing will help determine his progress, and when they can all be a family together again. DAY +100 should be the day of release to return to Home, if everything is going well with his counts. That day is August 20, the day before Hunter’s birthday. Hunter said, “that would be the best birthday every.”

Testing: On Day+80 testing, Liam will get his ferritin level, BMB, NK fuction and skin biopsy. I hope all turns out well. We will also get a overall percentage for his graft to show how much of Hunters cells have grafted.

Clinic appointment for Rash: On our way to the dr so they can check out his rash.
We just have 2 wait & watch the rash. Tomorrow is the big day 80 evaluation BMA, skin biopsy, & all the blood work. Keep Liam n your prayers

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