Liam's HLH Journey

Update from Kristy – June 11, 2011, 10:00 AM
ANC 1651 (yesterday’s ANC 2176) (1500-5400 normal)
WBC 2.6 (yesterday’s WBC 3.9) (6.0-17.5 normal)
Platelets 111 (yesterday’s Platelet 89) (250-600 normal)
Hematocrit 29.6 (yesterday’s Hematocrit 29.4) (33.0-39.0 normal)

The Doctor is very pleased with Liam’s progress. He was glad to see that Liam’s platelet count came up on it’s own, he said that is great. Liam will start the transition of preparing to leave the hospital. He will have a 4 hour daily pass, returning back to the hospital. He did vomit this morning. They started him on the steroids to help with the GVHD. He has a small dectectable amount in his tummy.

Promise Box Quotes
Verse: What shall I return to the Lord for all his bounty to me? Psalm 116:12
Quote: Thank you for miracles in my life ~ big and small, seen and unseen.

Kristy’s Twitter Update – Day+30 ANC 1651 WBC 2.6 platelet 111. Liam threw up this morning not sure why. The Dr said we should b out of here next week 🙂

Update from Aunt Tami – Friday, June 10, 2011, 8:16 AM
ANC 2176 (yesterday’s ANC 934) (1500-5400 normal)
WBC 3.9 (yesterday’s WBC 2.9) (6.0-17.5 normal)
Platelets 89 (yesterday’s Platelet 84)  (250-600 normal)
Hematocrit 29.4 (yesterday’s Hematocrit 31.1) (33.0-39.0 normal)

This is such great news, this is the highest numbers yet.

Promise Box Quotes
Verse: Worship the Lord with gladness, come into his presence with singing. Psalm 100:2
Quote: As my heart is filled with gladness, let my mouth sing out praise to you.

Liam & Auntie Tami ~ He loves his Auntie

Liam missed his mommy so much. 5 days apart

 Update from Kristy – The biopsy came back he has the smallest
detectable GVHD so they will start steroids today.

My Aunt Tami did such a wonderful job taking care of Liam. She is truly amazing. I love you Aunty and I am so blessed to have you

I changed Liam’s Hickman dressing today. It is scary but I am very proud of myself for doing it.

Thank you to everyone that is attending the golf tournament for Liam tomorrow. There is not words to express how much this means 2 our family.

Natalie Grant – Your Great Name

6 min – Aug 24, 2010 – Uploaded by godthroughmusic316
…
www.youtube.com/watch?v=IuuLBPOYcI8

Update from Kristy via FB – June 8, 2011, 5:28 PM – Day+27 ANC 2037 WBC 3.8 he will get the scope done tomorrow he threw up had some diarrhea and got a rash again so they want to check for the GVHD. They will not be doing BMB they are just going to do blood draw to look for Hunter’s cells:) Liam is truly amazing.

Update from Aunt Tami – June 8, 2011, 7:48 A.M – ANC 2037 WBC 3.8 – Thank you, Lord.
Nana love those numbers, Love you Little Warrior. ((HUGS)) oxoxo

This week has been a little overwhelming. Kristy became very sick Sunday night about 11pm, and had to leave the hospital. She was so concerned for Liam, she didn’t know what to do. Jared stayed with Liam, and she walked back to the RMH at 2am. I don’t know how she made it over there, she was so sick. Papa left on Monday morning as soon as he heard Kristy was sick to take care of her. Tuesday morning Jared called to say he was feeling ill as well. So papa went over to stay with Liam. It just seems to keep getting more overwhelming. Papa had been their for a couple hours, and he started feeling ill himself and had to leave. We are so grateful that Papa’s sister Tami was able to arrange to come over to care for Liam. Please keep the family in your prayers.

Update from Aunt Tami – Wednesday, June 8th, 2011 7:48:20 A.M.
They had Liam scheduled this morning for a scope top to bottom. But they canceled this because he seems to be doing ok. She didn’t sleep well (I’m sure worried about Liam). But she said, he snoozed away and rested well. I think she tuckered him out last night. They played for hours. She rented Curious George on Netflix, he loved it.
Thank you so much Aunt Tami.

Photo from Aunt Tami this morning, love his sweet smile ♥

Promise Box Quotes
Verse: The Lord is my rock, my fortress, and my deliverer. Psalm 18:2
Quote: When life seems perilous, I know you offer me stability, safety, and rescue.

Posted on Liam’s FB Group – Liam’s Journey – HLH Warrior

Grandma Terri – Jun 8, 2011
DAY +27 ANC 2037 WBC 3.8
PRAISE GOD for Liam and his amazing strength and healing! Thank you everyone for the prayers, Liam is doing wonderful this morning and the doctors cancelled the scope for today. We are amazed that Liam went through the gastroenteritis and has rebounded so quickly! It has been a rough week and makes these numbers such a sweet reward!! We are all doing the happpy dance!

Kristy’s Twitter Update – June 5, 2011, 1:25 PM
Day+24 ANC 518 WBC 2.0 Liam now has a rash and loser stools but did take his bottle again. He seems 2 b in less pain 2day. I am so thankful

June 5, 2011, 10:29 AM – No labs yet, computers are down. They stopped Liam’s feeds via NG tube last night. He has been drinking more from the bottle today. Liam now has a body rash, not sure why. The rash comes and goes. They want to scope top to bottom, to make sure nothing is going on in his intestines.

Quote from Kristy – June 5, 2011, 3:30 AM
The cries that fill these halls tell a story of one in the darkest of their days, and also there is HOPE when it should not be possible…

Promise Box Quotes
Verse: It is you who light my lamp; the Lord, my God, lights up my darkness. Psalm 18:28
Quote: When my energy and passion for living run low, you help me refuel.