Friday, July 8, 2011
Liam has a clinic appointment today. I will update more info later.
Update: 4:41 PM
Kristy said all of Liam’s labs are still in the normal range. The Chimerism-Testing was still the same as on Day +30. On DAY +80 Liam will have a Bone Marrow Test to check Hunter’s Donor Cell count. They will also check his NK Function at that time.
Liam has another tooth that came thru on the top and the other one is about to come thru.
Thursday, July 7, 2011
Kristy said the test results came back negative for the Cytomegalovirus (CMV) infection. That is such great news. Thank you, Lord.
Source: http://www.mayoclinic.com/health/cmv/DS00938
Cytomegalovirus (CMV) is a common virus that can infect almost anyone. Most people don’t know they have CMV because it rarely causes symptoms. However, if you’re pregnant or have a weakened immune system, CMV is cause for concern.
Once infected with CMV, your body retains the virus for life. However, CMV usually remains dormant if you’re healthy. People with weak immune systems have a greater risk of becoming ill from CMV. There’s no cure for CMV, but drugs can help treat people with weak immune systems.
Wednesday, July 6, 2011
Liam is now back at the Ronald MacDonald House. He is doing really well. The steroids are slowly being weaned down. Kristy was able to watch the Fireworks from Liam’s Hospital room monday night.
Monday, July 04, 2011, 8:33am
Kristy is resting at the RMH. So glad she is getting a restful nights sleep. I will post update when I get one from her. We all hope everyone has a great 4th of July.
May your Fourth of July be filled with the warmth and love of family and a sense of pride in our heritage….. “A special day for remembering what our ancestors went through”
Healing Hand of God Lyrics
I have seen the many faces,
I fear in the pain.
I have watched the tears fall plenty,
From heart ache and strength.
So if life’s journey, Has you weary and afraid.
There’s rest in the shadow of his wings.
I have walked through the valleys,
The mountains and plains.
I have held the hand of freedom,
It washes all my stains.
If you feel the weight of many trials,
And burdens from this world.
There’s freedom in the shelter of the Lord.
Chorus:
I have seen,
The healing hand of God,
Reaching out and mending broken hearts.
Taste and see the fullness of His peace,
And hold on to what’s being held out.
The healing hand of God.
I have touched the scars upon His hands,
To see if they were real.
He has walked the road before me,
He knows just how I feel.
When you feel there is not anyone,
Who understands your pain,
Just remember all of Jesus’ suffering.
(Chorus)
Cast all your cares on Him,
For He cares for you.
He’s near to the broken and confused.
By His stripes,
Our spirit is renewed.
So enter in the joy prepared for you.
(Chorus)
The healing hand of God (x2)
And hold on to what’s being held out (x2)
The healing hand of God
Oh Oh Oh Oh
Posted inInspirational Songs|Comments Off on Jeremy Camp – Song: Healing Hand of God
Kristy’s Twitter Update – Sunday, July 3, 2011, 12:15 PM
Liam is doing very good. He is a little climber and into everything. We have been so blessed and I am so thankful.
Kristina Smith – Friday, July 01, 2011, 12:30 AM
Liam is doing good. Hoping the antibiotics will kick the CMV. I am so thankful that there is something they can do for him. Last night I was thinking about how if this would of happened 20 years ago Liam would not be here. I am so thankful that he is.
Thursday, June 30, 2011, 11:40 PM
Liam will probably be in the hospital for at least a week. They will recheck him for the CMV next week. They did a stool test to check for the C.diff, the preliminary results were negative.
Skyped with Kristy and Liam tonight. It was so good to see them. Liam was a very BUSY little bee. He was trying to get into everything. Mommy need 8 arms to keep up with him. He really looked good, love his sweet smiles. Nana miss them so much. xx((HUGS))xx
The family and friends of our little warrior, Liam Smith are uniting to raise support in helping him and his family as they fight to overcome Liam’s rare, but life threatening disease. We hope you will join us.
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Liam R. Smith
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Woodland, WA 98674
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Today, I was admitted to the hospital to start the preparation to receive donor cells from my big brother Hunter. Please keep us both in your prayers.
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Seattle Children’s Hospital
www.seattlechildrens.org
4800 Sand Point Way NE
Seattle, WA 98105
United States
PHONE: 206.987.2000
Dr. Jean Sanders and Liam
Dr. Jean Sanders built the pediatric transplant program at Fred Hutchinson Cancer Research Center and provided exemplary medical care and compassion for thousands of patients and their families. During her career she trained more than 90 specialists in her field and authored over 300 scientific publications. She also chaired multiple cooperative research group studies and served as advisor for many medical and scientific organizations including the Children's Oncology Group, the National Childhood Cancer Foundation, the American Academy of Pediatrics and National Institutes of Health.
Click on the photo to read about Dr. Jean Sanders. You will be redirected to http://questmagazine.wordpress.com/2012/06/11/pediatric-transplant-pioneer-jean-sanders-built-the-hutchinson-centers-and-the-nations-pediatric-transplant-program/
Seattle Cancer Care Alliance
www.seattlecca.org
Mailing Address:
825 Eastlake Avenue E.
Seattle, WA 98109
Main Entrance:
1354 Aloha St.
Seattle, WA 98109
Parking Garage:
1335 Aloha St. (under the clinic)
Seattle, WA 98109
Need help finding SCCA?
Call (206) 288-SCCA (7222) or
(800) 804-8824 .
Histiocytosis Association
Source: www.histio.org
We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.
