Sunday, May 22, 2011, 10:35 AM
Phone update from Kristy this morning. A bit of a low moment this morning. Liam is still in alot of pain, it is so hard to hear the sad painful cries thru the phone. His labs went back down today. I will try to get more info later.
WBC <0.2
ANC (Absolute Neutrophil Count) 0
Platelets 13
Kristy’s Twitter Update – May 22, 2011, 2:20 PM
Day+10 Liam’s ANC and WBC are 0 again but they expect it to go up and down They got his pain under control last night but today had 2 go up
Liam will get platelets today his level was 13. He will also get IVIG the immune booster. I just hope that we can get his pain under control
May 22, 2011, 5:01 PM
Liam has a low temp 101. They are going to do lab work to see if he has an infection. It is going up and down.
May 22, 2011, 7:48 PM
They are taking Liam to Radiology to get a chest x-ray.
Kristy’s Twitter Update – May 22, 2011, 9:30 PM
Liam has a fever they r not sure why. He got a chest and stomach x-ray they came back clear. So now we just wait and hope for the best:(
Liam getting a Chest x-ray
Dear Little Liam, are hearts ache knowing the hurt you are going through. It is so hard to have such a sweet baby in pain. I pray for the Lord to guide the doctors and nurses as they care for you and that they can help to relieve your pain. I have your mommy, daddy and pappa in my prayers for strength, it must be so hard. You have shown such strength, grace and courage and we can’t wait for the better days ahead. We believe in you and your complete healing and can’t wait to see your beautiful smile soon!! Hang tough our HLH Warrior!
May God bless you and heal you!
We love you and your brothers!!
Grandma and Grandpa xoxox
Lord, you love Liam as You love all children,
Bring healing to Liam who is not well.
Stay by his side and comfort him through this trying time.
Keep us ever mindful of Your loving presence
Bless him with Your powerful healing and comfort us also.
Thank You for hearing our prayer!
Amen
from: Jan Carter: Liam’s Journey – HLH Warrior
Some times it is so hard to understand why things happen. God never promised we would never face hard times He just promised to be there with us. I just pray right now Jesus hold baby Liam in your hands and give him peace and healing. We need a miracle Lord. I pray that you would give Liam’s parents and Grandparents the strength and faith they need right now.
Some of the kinds words from Liam’s FB Group. Thank you to all of you.
Lynne Liston-Krause 10:40am · May 22
awww….hang in there grammy..we’re here for you too…
Tina Bragg Wolf 10:51am · May 22
Hang in there guys! ♥
Tiffany Ann Hall Stay 10:55am · May 22
strong and Liam keep fighting!! Xoxo
Karen Beavers 11:02am May 22
Awww poor little man. He is surrounded by family that love him so much and has people all over the world praying for him, praying for you all. Day +10 what an achievement!!! I hope and pray things will get better really soon. Try and stay strong sending lots of love to you all you are all in my thoughts all the time xxxx
Robin Cazier We ♥ you Lil man!! Stay steong
Robin Cazier 1:57pm May 22
We ♥ you Lil man!! Stay strong
Brandy May 3:15pm May 22
All of our love and prayers still coming your way…you can do it Liam!
Kandie Schmitz 4:53pm May 22
Praying off and on each day for our Little Warrior and our family! Hugs to you all. ♥
Lori Sargent 5:59pm May 22
Hang in there grandma. It must be so hard. Our thoughts and prayers are with you all.
Jeannine-Jeff Ursillo 3:49am May 23
A nurse once told me they have to get sick to get better. I know its hard to see and hear but I can tell you first hand after watching 2 ogf my kids fight HLH. Its still early you will see cells very soon and he will start to feel better. Sometimes you see a glimpse of cells and they are gone the next because they are at work killing the boo boos. Day+5-Day+10 is the hardesty so you will se ehe will fell better each day slowly but surely from here on out.