Kristy’s Twitter Update – Monday, May 23, 2011, 11:59 AM
ANC (Absolute Neutrophil Count) 0
I am finding out why so many people say u have 2 b your child’s advocate. I feel like it is a constant fight We r not #s that is so sad 2 me
about 47 minutes ago
Being an advocate for your child, this link is from another family’s HLH Journey
ad·vo·cate: one that pleads the cause of another; one that supports or promotes the interests of another
Day+11 his counts r still 0 fever comes and goes. He is getting a blood transfusion today. They r trying to switch him to total parenteral nutrition (TPN) but I say no
about 31 minutes ago
He is still taking a bottle and getting food through his NG tube he is still tolerating it so why change it is much better for healing.
about 29 minutes ago
He will get Methotrexate 2day this will be his last dose I will be so glad when this is all over and he is free of HLH and BMT complications
about 26 minutes ago
May 23, 2011, 4:00 PM
Liam’s preliminary cultures came back they think he has Streptococcus in his blood stream. They had already started him on antibiotics. We have to wait for the final reports.
Kristy Twitter Update – May 23, 2011, 4:12 PM
Liam has a bacterial infection in his blood so he is being treated with antibiotics. I hope the antibiotics clear it up
May 23, 2011, 4:31 PM
They are taking Liam down for another x-ray. They have had a difficult time getting a draw on him. So they want to make sure the Hickman Line is ok. They are thinking it could be positional thing with him.