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The family and friends of our little warrior, Liam Smith are uniting to raise support in helping him and his family as they fight to overcome Liam’s rare, but life threatening disease. We hope you will join us.
By Mail to:
Liam R. Smith
P.O. Box 913
Woodland, WA 98674 Activate your Email Subscription
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September 2010
This was taken 12 days before Liam was admitted to the Emergency Room.
November 2010
34 days after starting HLH-2004 Protocol, chemotherapy and steroid treatment.
May 2011
DAY +10
WBC <0.2 ANC (Absolute Neutrophil Count) 0 Platelets 13October 17, 2012
Today, I was admitted to the hospital to start the preparation to receive donor cells from my big brother Hunter. Please keep us both in your prayers.
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Seattle Children’s Hospital
www.seattlechildrens.org
4800 Sand Point Way NE
Seattle, WA 98105
United States
PHONE: 206.987.2000Dr. Jean Sanders and Liam
Dr. Jean Sanders built the pediatric transplant program at Fred Hutchinson Cancer Research Center and provided exemplary medical care and compassion for thousands of patients and their families. During her career she trained more than 90 specialists in her field and authored over 300 scientific publications. She also chaired multiple cooperative research group studies and served as advisor for many medical and scientific organizations including the Children's Oncology Group, the National Childhood Cancer Foundation, the American Academy of Pediatrics and National Institutes of Health.
Click on the photo to read about Dr. Jean Sanders. You will be redirected to http://questmagazine.wordpress.com/2012/06/11/pediatric-transplant-pioneer-jean-sanders-built-the-hutchinson-centers-and-the-nations-pediatric-transplant-program/
Seattle Cancer Care Alliance
www.seattlecca.org
Mailing Address:
825 Eastlake Avenue E.
Seattle, WA 98109Main Entrance:
1354 Aloha St.
Seattle, WA 98109Parking Garage:
1335 Aloha St. (under the clinic)
Seattle, WA 98109Need help finding SCCA?
Call (206) 288-SCCA (7222) or
(800) 804-8824 .Histiocytosis Association
Source: www.histio.org
We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.Childhood Cancer Awareness
- ROCKSTAR RONAN Ronan Thompson
- The Ronan Thompson Foundation
HLH Resources
- Alexandra H. Filipovich, MD – HLH Specialist contact info Dr. Filipovich has a special interest in histiocytic disorders, especially Hemophagocytic Lymphohistiocytosis (HLH).
- Be A Match, Save a Life! http://www.marrow.org/
- Hemophagocytic Syndromes and Infection by: David N. Fisman http://wwwnc.cdc.gov/eid/article/6/6/pdfs/00-0608.pdf
- Histiocytosis Association – Facebook Group http://www.facebook.com/groups/2251122469/
- HLH Family (Survivors & Angels) Facebook Group http://www.facebook.com/groups/HLHSurvivors/
- HLH-2004 Protocol PDF/Adobe Acrobat Treatment for HLH – Hemophagocytic Lymphohistiocytosis, is a rare disorder of the immune system
- Liam Smith's HLH Journey – Home Page www.liamsjourney.com
- Liam's Lighthouse Foundation – Liam Schulze Story http://www.liamslighthousefoundation.org/
- The Core of Diagnosis-Cincinnati Children's Hospital Lab and testing
- What is familial hemophagocytic lymphohistiocytosis? http://ghr.nlm.nih.gov/condition/familial-hemophagocytic-lymphohistiocytosis
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Recent Posts
- The Birthday Boy…
- September is Histio Awareness
- DAY +231 ~ LIAM’S CHIMERISM TEST RESULTS 2nd BMT
- DAY +218 – Three years ago today…
- DAY +195 Clinic Appointment
- The Birthday Boy…
- LIAM’S CHIMERISM TEST RESULTS 2nd BMT – DAY +28, +42, +84, +114, +127, +156
- 2nd BMT – DAY +153 update – 5 months post Transplant
- 2nd BMT – DAY +132 ~ Liam is doing good.
- 2nd BMT – DAY +110 – Coming Home :)
- 2nd BMT – DAY +84
- 2nd BMT – DAY +82
- Liam learning to ride his bicycle (Video Link)
- Spit for a Cure: New Study to Define the Role of Inheritance in Histiocytic Diseases
- Liam is my HERO…
- 2nd BMT – DAY +79 Mommy’s Superman
- Mommy’s beautiful baby boy
- 2nd BMT – DAY +70
- 2nd BMT – DAY +67
- 2nd BMT – DAY +66
Recent Comments
- Nana on My Hero… FB post by Mommy
- Ann on From a friends page..
- Auntie Deb on DAY+ 606
- Diane Balch on DAY +603
- Ann on DAY +600 UPDATE
- Nada Collins on Still no real answers…
- Debra Tsugawa on Liam is going to receive Hunters cells today, please pray… updates from mommy
- Nana on Today you can tell Liam is not feeling a 100% :(
- Ann on Today you can tell Liam is not feeling a 100% :(
- Ann on Picc Line placement today : (
Pages
- 08/14/2011 New Anxiety… Going Home…
- 09/06/2011 If God could take this all away… by Kristy
- 09/25/2011 I’am truly blessed… by Kristy
- 10/10/2011 Liam’s diagnosis, One year later… by Kristy
- 1st BMT – DAY +0 Transplant Day – Photos
- 1st BMT – Journal Updates to Day +50
- 1st BMT – Liam’s Chimerism Engraftment Results
- Bone Marrow Registry Info
- HLH Stories
- Links
- What is HLH or FHLH?
- Alexandra H. Filipovich, MD – special interest in histiocytic disorders, especially Hemophagocytic Lymphohistiocytosis (HLH)
- Applying for Social Security Benefits for histiocytosis.
- Diagnostic criteria for hemophagocytic lymphohistocytosis (HLH)
- Diaper Rash Care & Home Remedies
- What are the symptoms of adrenal insufficiency?
Archives
- September 2015 (2)
- October 2013 (2)
- September 2013 (2)
- August 2013 (2)
- July 2013 (1)
- June 2013 (1)
- May 2013 (20)
- April 2013 (15)
- March 2013 (33)
- February 2013 (13)
- January 2013 (20)
- December 2012 (7)
- November 2012 (9)
- October 2012 (18)
- September 2012 (9)
- August 2012 (7)
- July 2012 (11)
- June 2012 (4)
- May 2012 (7)
- April 2012 (19)
- March 2012 (14)
- February 2012 (10)
- January 2012 (26)
- December 2011 (9)
- November 2011 (13)
- October 2011 (16)
- September 2011 (23)
- August 2011 (27)
- July 2011 (29)
- June 2011 (36)
- May 2011 (25)
- April 2011 (11)
- March 2011 (7)
- February 2011 (5)
- January 2011 (13)
- December 2010 (14)
- November 2010 (13)
- October 2010 (16)
Monthly Archives: July 2011
DAY +75
Update from Kristy: Wednesday, July 27, 2011 Day+75 Liam’s day 80 evaluation is on August 4. So we will get some answers. He has apts to check his eyes and mouth for GVHD
DAY +74
Updates from Kristy: Tuesday, July 26, 2011 Liam is now doing pull ups off the kitchen table by himself . I am going to try and get a video of it. We have dr apt today I think they will … Continue reading
DAY +73
Update from Kristy: Sunday, July 24, 2011 We had to go to the hospital last night. Liam was not wanting to eat or drink. They think he is having withdrawal so we went back up on his oxy(pain meds). Please send out prayers … Continue reading
DAY +72
Update from Kristy: Saturday, July 23, 2011 Liam’s appointment went very well yesterday. They decreased his feeds in half, stopped IV mag now he just gets oral mag. He is CMV free for now. He decided he needed to pull … Continue reading
DAY +71
Update from Kristy: Friday, July 22, 2011 The sun is shinning here in Seattle beautiful morning. I am hoping to go biking before our apt have a wonderful day. Kristy said the appointment went well. It was with Dr. Sanders, … Continue reading
DAY +70 – Liam has 6 teeth now
Update from Kristy: Thursday, July 21, 2011 Day+70 Liam has 6 teeth now & hopefully will get a break n teething soon. He is now climbing up & on kitchen chairs and into clothes hampers
DAY +69 – Liam got his 4th tooth today
Update from Kristy – Wednesday, July 20, 2011 Day+69 Liam got his 4th tooth and working on two more. I went 12 miles on my mountain bike again and it felt so wonderful. Soon I’m going 20
DAY +68
Tuesday, July 19, 2011 Update from Kristy – Day+68 Liam had physical therapy today to see if he was where he should be and he is. Dr apt went good he is amazing and truly a warrior. 🙂
